Tuesday, March 17, 2009

Happy St. Patrick's Day!!!

Big girl got to try cereal for the first time today!!! She was looking in the bowl for more!!
She thought it was funny to spit it! Doesn't any kid??

Cole was able to get her to laugh. It was soooo cute!!


My 1st St. Patrick's Day


Mommy calls this my "cheesy" smile.
Sorry it has taken me so long to update!!! Lindsay was moved back to Moderate Care on Saturday. She is feeling much better and looking just great! She is slowly getting her oral potassium added back to her feeds and is half way there already. Last night she had a little episode where her O2 sats just wouldn't come up out of the low 60's. Xray showed that she was a little wet on her right lung so they added an extra dose of lasix and a nasal cannula. She was at 2 liters of oxygen last night and she is down to 1/2 liter tonight. The princess does things in her own good time so she should be as good as new by Thursday and maybe tomorrow night. She pulled her NG out today so we are leaving it out until we absolutely need it back in. She got so mad and upset when we tried to put it back in that her o2 sats were kind of scary and took a bit for her to recover. She does so well with her meds and feeds orally that this shouldn't be a concern to leave it out. It's when she isn't feeling well that she really need the NG tube. All in all she had a great last few days and reached a milestone tonight by trying rice cereal for the first time. She did really well! I think she will have the appetite of her younger brother! Uh oh! ;-) Well, mom is exhausted and going back to the RMH for some R&R. Enjoy the photos!! I will probably post more in the next few days.
Love to you all!
Suzie

14 comments:

Alison and Rich Lee said...

Good Morning Miss Lindsay! I love waking up to new pictures in the morning! You are ssoooooo cute!!!! Way to go eating cereal. Keep up the great eating. Tell your mom that you want spaghetti!!!!!

Love you guys!
Alison

Mark said...

That is so cool that she got to try cereal for the first time. I remember that will Annika and now she is hooked! The pictures look great too. She is such a little cutie! You guys are in our thoughts everyday.

aimee gillespie said...

Oh, how great to see that beautiful face without the tubes in her nose! Way to go on the cereal sweetheart! We're continuing to pray that your angel heart comes quickly so that you can come back home :-)

Love to you all,
Aimee & Family

Stephanie said...

Wonderful to hear that Lindsay is doing well and hope they're getting all the glitches out! Love Love Love the last pic of her smile..that is adorable!

Continuing to keep you all in my prayers!

The Butcher Family said...

Thanks for giving me my Lindsay fix this morning! I was having withdrawals!

Love you!

Crystal Mason said...

SHE IS SO GORGEOUS! Oh my!!!! I love her smile and her hair..

Anonymous said...

Wonderful to see that appetite for real food! Is she a relative of ours or what??? Looking forward to seeing you all soon. Love to all of you. We're finding that in some ways 6 weeks is a long time to be away, in some ways not enough...XOXOXO/AuntC and Uncle Roc

jessica jenkins said...

Thanks for sharing the pics, we all enjoyed them here at UT. Glad she is doing good! See you soon

The Simmons Family said...

LOVE the smiles!!! I saw the oxygen and got nervous.. hopefully it's gone already. Glad to hear she's eating better too.

Katie said...

Rice Cereal!!! Yay :) I bet that was so fun watching her take that! She does look great Suzie, I'm so proud of her! And you... Keep it up sweet princess!!! Thanks for the update too, I miss seeing her darling face :)

Jennifer Butcher said...

So glad that she is doing better. We keep track of you guys, Brit is usually the one to say there is an update. We continue to pray for you and all the other sick children. The Butcher Family

Lauren said...

I am so glad Lindsay is doing so good. I have been following the blog for a while. I think I wrote once before. I was hoping if you had a second you could email me my daughter school is doing a collection for the RMH and I am not sure if we put it in Lindsay name if it would help you out. If you could email me that would be great it not I understand. Always thinking of you in Chicago!!! Lauren
mikaelajoymom@sbcglobal.net

Evie's Story said...

I for one LOVE the cheesy smile:-)!!!!!

Anonymous said...

Awesome! She keeps lookin good! Take care and make sure you get your rest too.

Lisa