Friday, May 29, 2009
Now, please know that ANY organization needs donations, so please don't feel like you have to donate to these. I was asked about my preference and I have a special place in my heart for the above.
Also, good luck to all of you that have purchased cruise raffle tickets. The drawing is TONIGHT and tickets are available up until drawing time which is at 7:30 pm. Thanks again for all of your support and may the one who wins choose to take me as their guest! ha ha ( I am sooooo kidding!!) ;-)
Tuesday, May 26, 2009
We have some sweet side prizes available: 2 Chicago Cubs tickets and 2 U of M football tickets.
So, your tickets are good for more than the cruise for two on the Freedom of the Seas.
We'll be selling tickets right up until the drawing begins, so if you still want tickets, let us know and we'll be sure to get your ticket stub in the drum for the drawing. Just contact Linda at firstname.lastname@example.org Tickets are $20.00 each or 6/$100. All proceeds go to the Lindsay Dean Heart Fund. Remember because of you, the Dean's are above water after almost a year with Lindsay in the hospital most of that time.
Heart Hugs to all of you,
The Lindsay Dean Heart Fund Committee
Wednesday, May 20, 2009
Tuesday, May 19, 2009
Cole called me tonight after his game and said that he had 3 home runs! ha ha Well, for those of you that know how t-ball works, everyone gets on base and the last batter ALWAYS hits a home run!! ha ha He is batter #1 so they must have hit in reverse order tonight. ;-) Too cute!
On a heavy note tonight, remember the photo that I posted last week of Lindsay visiting her two heart brothers that were in the hospital too.....Ethan and Tommy? Well, Ethan got to go home for one night and then was right back in the hospital on Sunday. He is suffering from an awful disease known as PLE, Protein-Losing Enteropathy. This occurs in 10% of kids that have had open heart surgery and research is still being done as to why this happens. Anyway, sadly, Ethan is loosing his fight and is in the PCTU right now. Things do not look good and I am afraid that his time is running out. I ran into Colleen, Tommy's mom, tonight and she shared the heart breaking news with me. I can't begin to tell you how frustrating this must be for them for Ethan to have gone through all that he has with HLHS and now this is what happens?? Do you remember around the time that Lindsay was born, my mom mentioned Taylor Grainger? Well, Taylor also lost her battle with PLE and was also born with HLHS. This past weekend was the 2 year anniversary of her passing. I know this because this is our wedding anniversary. ;-( Anyway, ever since Taylor passed, we have been a contributor to Children's Hearts Fund to help fund research to prevent and find the cure for PLE. Maybe that can be the donation you make for Lindsay's birthday......I know that it will be mine! http://www.childrenshearts.org/
To the Bilpo's: My heart can't ache enough for you right now. Ethan is a true fighter and will always be in our eyes. I know that God is holding you close and will comfort you in these days to come. Taylor will be right there welcoming Ethan, I know it! Sending hugs!
With Love and a heavy heart,
Monday, May 18, 2009
(click to view larger image)
Our precious little princess will be 1 year old on June 11th. Above is the invitation and all who are willing to drive a ways to see her are invited! (NOTE: party is on the 7th!!!) After a long discussion and thinking this through, JR and I have decided that although gifts are customary for a birthday party, we are going to break tradition this time around. So, in lieu of gifts, especially since Lindsay is very limited for space, we have decided to ask that you give in another way. Anyway you choose actually. Whether it is giving blood, volunteering, registering to be an organ donor, or giving a monetary donation to your favorite charity. One simple request is all we have.....please email us or comment under this posting as to what you did to be the ray of sunshine in someones day and/or life. We can't begin to express our gratitude to all of you who have helped, and continue to help, us get through this whole life altering event in our lives financially. We are "above water" because of you!! And the amazing part of this is that you keep giving!! This is so unbelievable and we are humbled. So, please email me if you plan on attending the princess' birthday party. I know it is a far drive for all, but we certainly would love to have you as our guests on the special day.
With Love, Suzie
UPDATE: Lindsay is doing very well after her Rituxin last week and starting yesterday, she is getting her IVIG treatment. They are doing 50cc's over a 12 hour period two days in a row to hopefully prevent any fluid overload issues. So far so good except for a high heart rate last night but before I left for the evening, the rate was coming down very slowly. No calls overnight so that is a very good thing! Today (5/19) is her second day and the next dose will begin at 2pm. Say your prayers that this will help. This time she has CellCept on board so who knows what will happen with all three mixed together! ;-)
Also, Cruz's CT scan came back completely within normal ranges!!! When the ENT told me this at the follow up appointment on Thursday, I could have just hugged him! He knows all that we have going on and I think it would have been an awful thing to have to say something was wrong.....but there isn't! THANK YOU LORD!!!! As Cruz would say, "Whew! That was close!" ;-)
Friday, May 15, 2009
HAPPY 10th ANNIVERSARY SUZIE & JR
I know it's not the Hawaii Trip you planned on for your 10th anniversary, but at least you could be together this weekend and hopefully you can be at the ballpark watching Cole hit a "home run".
Your marriage is certainly a home run!!!
Love to both of you. You're my heros!
Tuesday, May 12, 2009
Monday, May 11, 2009
Thursday, May 7, 2009
Wednesday, May 6, 2009
I would like to ask everyone to help and pray for Allison's safety as she moves on to an exciting chapter in her life. Next week she will be starting her study abroad in Paris and will be there for one month. After speaking with her yesterday, Allison is so excited about getting to see another part of the world and learning how the "big dogs" in marketing do it so well. Hello! The Louis Vuitton store?!! AWESOME!!! Allison attends Michigan State University (yeah, I know......we tried to talk her into U of M....ha ha!) and will graduate in December. Again, we are so proud and we wish her the best. Have an awesome time and don't forget your passport!!!!
Love you bunches!!!
Tuesday, May 5, 2009
- 1 community
- 5 generous families
- 7 days
- 53 “Pray for Lindsay” bracelets
- 20 homemade hair scrunchies
- 230 cookies
- 58 bags of chips
- 68 cans of pop
- Hundreds of miscellaneous garage sale items
It all started with an episode from John & Kate Plus Eight. In the episode I saw, the family put on a garage sale and donated all the proceeds to a cancer charity. I thought what they did was great and was instantly inspired. I remembered some very good friends of mine saying they were planning on having a garage sale in the near future, I decided right then I would join their garage sale and sell my items and donate them all to the Lindsay Dean Heart Fund. My first thought was that I would never be able to do something big and successful like John & Kate Plus 8 (after all I am just ONE person, and don’t have a TV show on TLC) but I thought I could raise a $100 or so for the family….. BOY WAS I WRONG! I may be only ONE person, but I have a BIG God! God took what I had to sell and multiplied it, people donated items and handmade crafts for me too sell too. We also sold cookies and drinks and took donations at the sale. I was blown away by the generosity from so many people who have never met the Dean family and never will. I was touched by each and every person who came to the sale and donated. People constantly told me there were going to put Lindsay on their prayer lists at church, one woman gave half her garage sale money, a woman who works at a hair salon put up a donation jar and sold bracelets, and so much more.
To all of you who came and donated THANK YOU. To all of you who are now praying for Baby Lindsay THANK YOU. To all of you who are now following her story THANK YOU. To all of you who helped me make this happen THANK YOU. I pray that God will bless each one of you, as you have truly blessed one very deserving family.
If you give, you will receive. Your gift will return to you in full measure, pressed down, shaken together to make room for more, and running over. Whatever measure you use in giving — large or small — it will be used to measure what is given back to you."
When I was asked at the garage sale why I was doing this, I had a simple answer; I wanted to bless a very deserving family. But when I say that everything we did was to bless one very deserving family, deserving is an understatement. It is hard for me to put into words why I wanted to bless the Dean family. I wanted to bless them for their strength during the most challenging time in their lives, I wanted to bless them for their love for their daughter Lindsay, I wanted to bless them for their faith in God during a time when it has been challenged the most, I wanted to bless them for their courage to press forward, I wanted to bless them for their commitment to their other two children, and I wanted to bless them for their choice. The Dean’s chose life for their daughter Lindsay. They knew before Lindsay was born what laid ahead of them. They knew of the heart surgeries, possible transplant, countless days in the hospital, the financial burden and the difficulty that possibly lied ahead for them, and they chose life for her. This family is going through the most difficult time in their lives, something that most of us could never imagine and THEY FEEL BLESSED. Suzie and Jr do not question why God gave them a baby with a special heart, they say they are BLESSED that God chose them to be the parents of this wonderful baby girl. That alone makes them the strongest and most deserving people I know. Suzie and Jr I commend you for the amazing parents you are to Lindsay, God couldn’t have given her a better family.
And as a final note…. I encourage everyone to never again say “but, I am just one.” God can take a tiny seed and multiply it further than you can even imagine. Be faithful and God can do BIG things!