Tuesday, May 12, 2009

Eventful Day!

My heart transplant buddy, Tommy. He is here for his Rituxin treatment.
Lindsay, Ethan, and Tommy. Ethan is here with complications due to PLE and his new G Tube. Get better soon Ethan!!!!

Lindsay being Lindsay.......so stinkin cute!!!!!!


Look Daddy! I like pretzels too! Well, sucking on them anyway. She licked all the salt off of it!



Too precious for words.

Well, after spending the majority of her day puking, Lindsay has been quite the busy body. I was able to take her outside again today and needless to say, she enjoyed it thoroughly! I was able to capture some wonderful photos including her new header photo on the blog. We also had a photo shoot in her crib, but those pictures will have to wait. ;-)
Lindsay had all of her blood draws yesterday to check her antibodies and Lindsay is finally ready for another dose of Rituxin. This will happen tomorrow afternoon and the doctors have also decided to give her another round of IVIG again. The IVIG will be given on Thursday if everything goes well with the Rituxin tomorrow. The BIG news is though the Lindsay is still testing as ABO blood type which means that she can still accept a heart from ANY blood type. This is just HUGE because usually by now, infants have already started producing antibodies against the other blood types and she is not. As a matter of fact, Meg (the nurse transplant coordinator) said that instead of her numbers going up as expected, they are actually going down! What? you say. Yes, this is correct! I do believe that the man above is giving us a sign on this one! Thank you Jesus! (I do think that her angel friends in heaven have a part to play in it too!)
All in all, minus the puking, Lindsay looks wonderful and is just a joy to be around. I am a blessed mother with a wonderful daughter. I couldn't be more proud of her!
Until next time~
Love, Suzie

13 comments:

Chloe's Couture said...

I just found your blog through "Rose Haven" and I watched the miraculous surgery that your daughter went through. The Lord has blessed you with a beautiful, precious girl. What a treasure. I will pray that she continues to heal. Use your testimony to encourage and strengthen others who will endure such trials. Our God is good! The Lord has given you a story to share. God bless you and your family-love from Germany!

Elaine said...

Oh, Suzie...what beautiful pictures and wonderful news about Lindsay's antibodies! Lindsay's Prayer Warriors have been very busy and it feels great to hear good news. It is also nice to read all Lindsay's good news, after reading about the Freemans' loss and watching Sofi's video...the kleenex memo was much appreciated! :) Please know we are all praying for all the precious heart babies we know and love because of you. We will not give up!

Heart Hugs, Elaine

Stephanie Winter said...

That is great about her numbers!! What numbers are down?? her antibody numbers??
Love the bow picture! Great pictures... sorry to hear about all the puking today! praying for a better tomorrow! We are getting ready for camping... can't believe that was a year ago already that you guys came out for the campfire!... with her still in your belly! So proud of you guys! Honored to call you my friends!
love you guys!

The Butcher Family said...

LOVE the picture of the Princess in the grass! She looks great in green! I know it is so special for you to be able to take her "out" for a little while, too! What a DOLL!!!
Praise God for her numbers going down! Praying this is a sign of awesome things to come and that her miracle will be here on earth for all of us to continue to enjoy seeing those big eyes smiling! We love you all so much and keep praying for Lindsay!
Love you, friend~ Rebecca

Danielle @ Living Out Loud said...

I have been thinking about Miss Lindsay a lot today... the wind is blowing - HARD :) So I'm delighted to see new pictures enjoying the grass and being outside... that top picture is precious! I'm also so glad to hear the news about her medical "numbers"... that jargon is so unfamiliar to me, but it sounds like great news :) Wire continue to hold Lindsay close in our hearts and pray that her "miracle day" will be here soon!

mrsrubly said...

your daughter is gorgeous. i am in prayer for her always. your family is always close in my thoughts and prayers.

aimee gillespie said...

Well Miss Lindsay, the salt is my favorite part of a pretzel too! ;-) Love the pictures. She's adorable as always. How wonderful that she was able to get outside again. And, what a social butterfly she is! Too cute! Glad to see that her numbers are doing as they should. Still praying that her perfect heart comes soon!

~Aimee

The Davidson's said...

And....we are so proud of you, JR, the boys, and of course that fabulous little princess!

The grass picture is by far priceless :)

We are thinking about you everyday - hugs, The Davidson Gang!

Stephanie said...

LOVE the new header picture!!!!!

Awesome Awesome news on her counts and blood type! Can't wait for the day that her angel heart is here and she's on the road to recovery and heading home with you! :) praying!

Anonymous said...

Princess looks stunning outside playing in the grass! Hope you guys are having a good Thursday!

Love, The Martin Family :)

Lisa said...

She is so precious! I love the new pictures!I am praying for you everyday!

Much love from a sister in Christ!

Alyson said...

She is just so cute!!

I wonder is Avery would like pretzels too......I'm willing to try ANYTHING at this point!!

I just love seeing her outside in the grass :0) How precious.

Blessings,

Alyson

Carrie said...

I just found your blog this evening through another, and she is just so adorable!! I love that picture of Lindsay with the big flower in her hair with her fingers in her mouth, just precious :)