After many lengthy conversations with doctors and nurse practitioners, we headed to Ann Arbor to get Lindsay checked out. She had started vomiting on Saturday night. After that incident, we then just proceeded with strictly g-tube feeds after her month long run on oral feeds. Things went fairly well on Sunday but with still a few throw ups. Monday was great! We stayed with all g-tube feeds and she did great all day. Then Tuesday came. Still vomiting and now it was getting concerning because we knew full well that she wasn't getting enough in as far as fluids were concerned. The most concerning thing though was that she was still vomiting with g-tube feeds. Now, our understanding was that she needed the g-tube to eliminate any possibility of throwing anything up! Well, not Miss Lindsay. She managed to do that as well! For those of you familiar with g-tubes, no, she does not have the Nissan wrap which wouldn't be shocking if it came up in discussion today or tomorrow. In the ER yesterday, a chest x-ray was done and that looked just fine. A g-tube x-ray was done with contrast and that looked fine as well. Our words exactly were, "Oh, crap!" Well, then what is the problem? IV fluids were started because as we all predicted, she was a little dehydrated. She is still on them today and looks like we will trial feed today to see if the extra fluid to plump her up a bit will help in the feeding department. In other words, thinking that the dehydration started to take its course on Saturday but she hadn't been tipped over the edge yet to not throw up everything. Besides the vomiting, she has been as completely normal! Just every now and then she will puke and then go about her business like nothing was wrong. What broke the straw for me was yesterday morning after the she threw up her morning feed of only 50cc's, she was starting to look a little pale and not quite herself, yet still smiling and playing. So, called Dr. G and here we are. Today will be all trial to see how she does after getting her fluids. Her lasix of course has been DC'd and I'm wondering if she has simply grown out of that and doesn't need it anymore. She was cut back from her 2x a day dose down to one and wondering if her one dose is now too much. Things that make you go hmmmmmm?? JR and I had our first experience of actually sleeping in the hospital room with the princess. That was fun! (sense the sarcasm?) With one very small couch and a glider rocker, I guess we made it work but both of us are extremely sore! Why did we stay you ask. Well, the Med Inn is full and we decided that since we weren't here for a lengthy stay, we would bypass RMH. AND there is a plumbers and pipe fitters convention in town and all hotels are booked or at skyrocketed prices that we aren't paying right now! Call us cheap, but rather than paying $120 plus a night at a simple Red Roof Inn, we will sleep in a room with the princess. And trust me, I pulled the travel agent card and no discount was given. ;-) Besides, we get more cuddle time staying at the hospital!
The docs will be rounding soon so I will update a little later.