Working on feeds.......

and then HOME on Thursday??!!!!! That is the plan anyway and we all know how that goes, so we continue to keep our fingers crossed. Today she starts her bolus feeds VERY slowly and move on from there. We are getting closer!!!!!!!!!!

She's Baaaaaack!!!!

Happy 13th month birthday princess!

Kissy Kissy!

Oh, Mom!!!!!!

"What? I'm not trying to take this bow off!! " This head band style will have to work for a while. The right side of her head was shaved because of the IV's!!!!! So, these will work in the meantime. ;-) Good thing they are cute!

Feedings are going great today and her incision site looks good as well. No leaks! Her echo from a few days ago was AWESOME!!!!!!! Dr. G said the muscle looked to be a little thick, but that was not shocking to him because he said that the donor was older than Lindsay and should be better as she grows. She is starting to play more and more and is definitely getting her personality back. She is starting to babble no-stop as she did before transplant! She is making everyone cry around here because of her improving so well. I have a feeling though that it is because they all know that she will be leaving very soon as well. Man, that will be a heart wrenching day but also a fantastic day all wrapped into one! Looking forward to it and not, if you know what I mean. So far so good here today!

Love,

Suzie

All is good!

Everything went well and Lindsay looks great! She is a little uncomfortable but that is being controlled with Tylenol. They decided not to start feeds until tomorrow because Lindsay is Lindsay and they want to be very careful! IV in the scalp is officially done and we had to replace it with one in the foot. This is for IV fluids until she can eat again. JR is headed home today to be able to attend PINKS ALL OUT in Martin tomorrow and then the Parchment car show on Sunday. I will head home on Sunday to do payroll and get the house ready for the princess' arrival! WOOHOO!!!!!!!!! Tears falling already.................

G-tube is in!

The update is that the surgery went well and we will speak to the docs in just a few minutes. Lindsay should be back in her room in about 30 minutes. Prayers are continuing to work!
Love, Suzie

G-tube tomorrow

Well, after deliberation, the decision has been made to put in a g-tube. This will be minus the nissan wrap right now, but we all know how things can change! We are ok with this decision and I think we all anticipate that she really won't need it for too long. Don't know what time the surgery is tomorrow, but I will post that when I know. We are waiting for an echo right now, surgery tomorrow, and then we will be working on her feeds and then then.....drum roll please............WE GO HOME!!!!! This will probably be early next week!
Talk soon~
Suzie

And the waiting continues

Well, we do have the results of the NMSES. Normal! So, we are waiting for everyone to read the scan that needs to and most importantly, the GI surgeon to read it and make a decision. So, I will update when we have the news. Lindsay has had a fabulous day and is taking another nap as I write this. Talk soon~
Suzie

Kindleberger Festival and Wine Tasting Party

This Saturday is the Kindleberger Festival in Parchment and we are going to give back to the community in the parade by throwing out "thank you" taffy to the community that has helped us so much this past year by supporting Lindsay and her family. Cole, Cruz, and cousin Zach will participate in the "thank you" taffy throw.

We will also be holding one of our famous bake sales in the park. If you would like to donate bakegoods, please call Steph at 269-352-8154 to set up drop off before, or just bring it to our booth which will be by the courtyard/ gazebo area in the park. We package the bakegoods in individual sizes and take donations instead of pricing.

WINE TASTING PARTY.....we still have tickets available for the wine tasting party on Sunday, July 12, 2009. This will take place at Don and Sue Lumbard's from 1pm-4pm. Tickets are $25.00 per person/$45.00 per couple....Beer will also be available for those non-wine drinkers.
Please contact Sue at lumbards@bronsonhg.org or 269-385-3667 for tickets.

Thanks for your continued support. Just like our little Princess Lindsay, we will not give up!
The Lindsay Dean Heart Fund Committee