Monday, October 6, 2008

Today......

Today we came into her room with not exceptional news but at least a plan of attack. The doctors did an echo this morning and found that she has increased pulmonary pressure and is creating what they call pop offs. This means that because of the increase in pressure from the hemi-fontan procedure, extra blood is traveling into veins that go directly to the heart instead of to the lungs. The good news is that they have a solution, hopefully, and Lindsay is starting to get some pedialite to get something in her belly to tolerate her Viagra. Yes, that's right, Viagra! This will help the pulmonary volume and the hope is that this improves her pressure and that we can get closer to removing her vent. It will be a few days before we know the effect of the Viagra so we are assuming not much will change until then. Keep praying for our princess. She really needs them now! Very fragile indeed.
Please add our son, Cruz, to your prayer list. He is having a cat scan done at 3pm this afternoon to take a closer look at his very inflamed neck due to the mono that he has. Lord help us! The testing has begun again I think. Have I mentioned that I'm loosing my hair?!!! Wonder why.....
More updates tonight~
Suzie

8 comments:

Simmons Family: said...

Oh my! I hope everything goes good with Cruz's Scan today. You don't need anymore issues.

Owen has been on viagra since his Glenn. It totally makes a differnece!!

Andrea

Anonymous said...

My heart goes out to your whole family - try to think positive thoughts - Junker family

Julie Miles said...

Praying for your whole family with all you have going on right now. My mom's had chronic mono for nearly a year and a half (not to scare/discourage you - I hear kids get over it quicker!) so I know a little about how Cruz must be feeling. You certainly don't need any more medical issues to deal with on top of Lindsay trying to get healed.

Heart Hugs,
Julie

jessica jenkins said...

OH my goodness, I will be praying for good news!!!!! Thanks for the updates, I don't know what we would do without computers!

Take care!
Jessica

Anonymous said...

Lordy...you can tell we are all at a loss because everyone says some version of "Oh my goodness"!! Who could think this stuff up...you should be writing a book! Poor Cruz...he must be sooo miserable. I hope the scan turns up NOTHING and that it is just taking him awhile to get better. We send him hugs and kisses.

As to the hair...at least you are not losing your MIND...there are wigs for the hair. As to the viagra...if it's working for Owen it may work for the princess!! We will all pray for success...imagine all the viagra jokes that are rolling around in our heads...I am keeping mine to myself...after this is a "family site"!!!

Love always, Elaine

Oh...the new pictures are awesome!

Anonymous said...

Seriously!?! I'm glad that Lindsay is hanging in there. Poor little Cruz. I'm at a loss for words--which doesn't happen much. :) You are all in our thoughts and prayers. God is really pushing up the bar on not giving you more than you can handle--He must know that you guys are extra strong.

Hang in there.
Love,
Amanda

Anonymous said...

Oh Suzie, I wish I could blink and you and your family don't have to go through all this! But, that doesn't happen, so we will Pray! You are constantly in our Thoughts too! Hang in there - HE will provide! You are all being held up in Prayers. Joe/Sara Dziewicki

The Winter Family said...

We are praying for you constantly and persistantly! Know that we are lifting you up... maybe God is telling you to cut your hair shorter?? Cole was great at school today, he said "Was that you that took me to Disney?" I know he was teasing because he tried to tell me he didn't have fun, then later told me he did. I have missed him! We will pray for healing! Love you guys!
Steph and family