Wednesday, November 19, 2008

All I Want For Christmas

is a new heart please....a new heart please.....and maybe her two front teeth too! You never know!! Lindsay's new theme song until she gets her new ticker. That's right folks, the princess is officially listed on the transplant list as of tomorrow. The doctors have decided to go ahead and list her and then go ahead with the medication that she needs to reduce her antibodies. They will get all of her blood tests drawn up in the morning and get things going. She might have the medicine by the weekend. We shall see about that though. Just depends on how quickly the lab moves, etc. She did spike another fever so they still wanted to wait to see if an infection developed on any of the cultures from the last few days. So far so good, but it still doesn't explain why she will spike every now and then. But with a little Tylenol and washcloths, we seem to have it under control when she starts feeling warm. Maybe a little sign of withdrawal but she is eating fine now and again, the mystery continues.
We had dinner tonight with Jason, Amanda, and Carlee. They are here for Carlee's hemi-fontan which will be on Friday. They had to come early for an echo and the cath lab prior to surgery. So good to see familiar faces again!
We left tonight and Lindsay was actually sleeping!!!!!! YEAH! The girl is finally getting some rest and hopefully more of her normal tomorrow. Can't wait to get my hands on her again. Sweet dreams and praying that her new heart comes soon!
Love, Suzie

17 comments:

Anonymous said...

Ok,,,yea, I get to be the first to congratulate you guys!!! I'm just on my way to bed, and I had to check on her, and I'm so excited for you all. I should be in bed getting ready for the kids tomorrow, but, got stuff to do. It sure would be great to get this thing on the way, eh? She's such a trooper, we both pray events for her getting better flow like they're supposed to. love and prayers,
Don and Brenda

The Butcher Family said...

What a big day...I'm sured it's filled with so many different emotions for you. Suzie, you are so amazing! I just don't think that I can tell you that enough! Lindsay is so so precious to us to the point that Wyatt is now in stalker mode...okay, so maybe I check on Lindsay a lot? Admission confessed! We love seeing her eating and sleeping and being held by her beautiful family!
Praying for Lindsay's new heart and for all of you as you move forward in her journey...praying first for her heart and then for the teeth! :)
Love to you~ Rebecca

Amanda-The Family News! said...

My prayers continue to be with you all. I have followed baby Mia and was so excited to see her get her new heart. I know we will see Princess Lindsay get her new heart as well and grow strong and even more beautiful!!! As for the teeth - my little girl will be 10 months on the 28th and still NO teeth! But I do love that toothless grin!!!! :)
Amanda- SC

Maggie Geiger said...

I must say, when you ask for a Christmas present Princess, it's a BIG one! In a few years you will be asking for a Barbie house like Alli (which I might say, I'm excited for too). Santa will have NO PROBLEM granting that wish because of that beautiful smile of yours. Teamed up with the eyes and he has no chance!!!
Suzie & JR, as usual we are praying for your continued strength. Your family continues to amaze us with their strength. Every night we fray for Baby Lindsay, her Mom & Dad, & her brothers. Remember you have alot of people behind you. You are NEVER alne even when it might feel like it.

Love,
Dan,Maggie,Ben,& Alli Geiger

Baseballs and Tutu's said...

Hip Hip Hooray!!!! What wonderful news. I pray she gets her angel heart in time for Christmas. What a glorious Christmas gift!!!

Rachel said...

I hope she gets her wish for Christmas. I'm glad to hear she is on the transplant list. I pray every day for her!

PS...the pictures below from the previous post are simply adorable. She is one pretty little girl!

Evie's Story said...

Mixed emotions Im sure are swirling. You are so positive and we stand in awe. Praying for the perfect timing, strength and ability to receive the new heart. And for you as you wait. May the Lord hold each of you close and may you find strength in him!

And goodness....where did all that hair come from. Its so thick and dark all the sudden - BEAUTIFUL!!!!

We love you!

Stephanie Winter said...

What a big day! Praying for your family and for a heart. Maybe the fever is from teeth popping through?? The doctors here will never admit that teething causes fevers, but all my monkeys get fevers when they get a tooth. Praying for all of your health! love you all,
steph and bob, garrett, william and maggie

Our Family said...

We are praying so hard for a new heart for Lindsay. I just told Emily that we need to start asking for a new heart for Lindsay and she gave a huge smile. I know our prayers are answered because we have prayed for new hearts for other children and they have received them--and are now at home!!!! Just wanted to let y'all know that Lindsay is always in our thoughts and prayers! God bless you guys!

Bernie Haberman

Katie said...

So glad to hear that the process has now begun...I'm sure it's a big relief. Hang in there and know that you're always in our prayers! Lots of love to the Deans from the Allreds! :)

The Simmons Family said...

I'm so thrilled to hear that she's OFFICIALLY on the list!! I enjoy reading your journey because we are about to embark on it as well and it scares me to death!!

PRAYING for a new heart!! Did they say what status she's listed as??

Andrea

Anonymous said...

Our prayers are with all of you as you await Lindsay's perfect heart.
Thinking of you & praying,
Sandy, Chris, ETHAN(8,HLHS/PLE)& Carleigh & Carson
www.heartsofhopemi.org

dani said...

Just wanted to say Hi to the Princess. She looks so pretty these days. Catching up to Brooke's locks of hair! So cute. I miss you all and wish I was there with you.

hugs from across the miles...

Dani

Anonymous said...

"There can be miracles when you believe...." We are a group of individuals who are blessed everyday to know this all too well... :):):) Have a wonderful holiday sweet heart! Always thinking about you at Helen DeVos Childrens Hospital...

NICU nurses!

louann boyd said...

LOOKING MORE LIKE DADDY EVERYDAY LITTLE PRINCESS...COMING TO SEE YOU THIS WEEKEND

LOVE AUNT LOU AND UNLCE DR BOYD
XXOOO

Anonymous said...

The love Lindsay has instilled in so many hearts makes it hard to believe hers is not whole. The faith and love radiating from the whole heart family is a blessing and lesson to each of us. Our prayers will continue for all of you and will include Lindsay's new heart.
Much love, Nancy & Steve

Anonymous said...

Well she is an amazing little girl!
She is the cutest! She someday will be healthy. Hang in there. She's in our prayers!



With a Prayers,
Hunter, Avery, Jess, and Mike
Neville