She sure is a tricky one to figure out these days. Before we left the hospital this evening, or should I say this morning, Lindsay had spiked a fever again. Doctors keep taking cultures and they don't grow anything, so no infection as of yet. They wanted to take more tonight but JR and I got a little upset because everytime that they do this, they obviously take blood from her that she needs to keep. After a long discussion with the doctors, and yes we went back to PCTU to have discussions with them as well, we have come to the conclusion that they will take blood cultures if she spikes again which we are quite convinced that she will because, even though the moderate care doctors won't admit it, SHE IS WITHDRAWING PEOPLE!!! grrrrrrr. We just think that she is not withdrawing quite so severe as other children. Low cardiac output could be another reason for fevers but her symptoms are even different from that. So, with a little Tylenol and we luke warm washcloths, she comes down nicely and is our happy little girl again. They just have to expect her to be doing this after being on constant sedation drugs for 7 weeks!! I hate to argue with some of the best doctors in the country, but we have seen her at worst and at her best and the mom is starting to come out in me..........picture me as Shirley McLain (sp?) in Terms of Endearment.....give my daughter the drugs!!! Give my daughter the drugs!!!!!
Well, it didn't go that far but I'm obviously still revved up about it since I'm posting this at 2:15 in the morning!!!! WHew!
Jr and I are leaving for Kalamazoo around 2pm tomorrow. We will get the boys for a night so that will be great to have them. Cole has a Thanksgiving program at school that we can't miss on Monday and then I'm back to Ann Arbor Monday afternoon. Jr will be home with the boys through Wednesday and then all three will be joining me in A2 for the weekend. Hoping we can keep them entertained enough to last that long. Otherwise, Jr will just go back earlier if need be. He is then back to work for a while.
Thanks for letting me vent tonight........keep praying and pray for our sanity....I think we have been here way to long and it just might be getting to us! :-)