Thursday, July 31, 2008
I took the liberty this morning of photographing her morning meds. Overwhelming?? From right to left: Captopril, Digoxin, Reglan, Previcid, Plavix study drug, Asprin, Lasix, and the rest of the dose of Previcid. All of these are taken each morning at 9am before she eats. You would think her little belly wouldn't have room for all of this plus formula! She takes meds so well. I am so proud of our little princess. I'm just thankful that all of these are oral and not shots! Could you imagine?! But, if they were, we would just have to suck it up and do it.
The latest in the family is that we took Cole to the ENT two days ago and he will be having his adenoids out and tubes put in his ears August 20th. That week will be something else let me tell you! Lindsay has an appointment with the pediatrician on the 14th, a cardiology appointment on the 15th, Cole's surgery on the 20th, Cruz's birthday is on the 21st, Cruz to the pediatrician on the 22nd, and Cruz's party on the 24th. WHEW! Can I say that I will be calling a few of you out there for help!!!
Well, the kids are bathed and I'm ready to hit the sack!
Even though a hectic schedule sometimes we all complain about being so busy, but I wouldn't want it any other way! GOD is good!
PS I have had a few mentions about where were Cole's photos on Patti's site? We didn't have his done because we are using his school pictures now as his annual photo that I of course will pass along in the fall after we get them back. I have to slow down a little on photos of Cole to make it even between all three kids. :-) Plus, I do the kids photos at 1,3,6,9,12,18 months and starting at 2 years and on, just once per year....professionally that is.
Wednesday, July 30, 2008
I would like to invite you to view pictures at Portraits by Patti. They are located at http://www.pattisportraits.com/clients.
When you go to the website click the Access Gallery link and enter in the access code below:
Access code: Dean
After you do that you will be able to view these pictures.
From this site you will be able to order what you would like to purchase as well. You only have two weeks to do so, so you better hurry!
Sunday, July 27, 2008
Saturday, July 26, 2008
Annabelle's mom, Rebecca is such an elegant writer and really puts into perspective what it's like to have her daughter in heaven and the blessings that we have to have another chance to have Lindsay for as long as God has her on loan to us.
Yes Elaine, it is an Annabelle bow that Lindsay is wearing with pride!
I find myself so torn between being with Bill through his stoke recovery and being with my daughter and granddaughter during this time. Although I know that Lindsay is in great care with her loving mother and father, it is my motherly instinct to be with my daughter and love and protect her. This is where I have to rely on each one of you to do for me. Thank you from the bottom of my heart for all your help.
Friday, July 25, 2008
Thursday, July 24, 2008
Miss Lindsay had a great day today. Other than getting belly aches from her new formula concoction, she should be good to come home maybe this weekend. She even got some cuddle time with "Aunt" Pam tonight.
They adjusted her formula again tonight before we left so hopefully no more stomach pains. The treatment for reflux has gone great so far. No spitting or throwing up since they started the meds so hopefully we won't have this incident again. I think I my have started getting some gray!!! We are home tonight with the boys and I will be up with her all day tomorrow so I can learn her new meds routine. We are taking home 2 more than what we came in with. :-) Not complaining if this works!
Bill went home tonight so that is great news on their end. Rest up Bill!
Keep the prayers coming! I think we have people listening up there!
Wednesday, July 23, 2008
Lindsay had a scan this morning and all was fine. No damage was done because they were so diligent about bagging her and respiration her so quickly. By her reactions at this point, we thought she was acting just fine, but they wanted it checked out.
She had her swallow study done and she definitely has reflux so the medicines and feedings are being altered. It just so happened that a Dr. was here today from U of M and said that they didn't want to do surgery on Lindsay because she's in too fragile of a condition.
I'm sure Suzie will be able to explain better later this evening if she can find the time to post.
Bill has been put on oxygen and they're running more tests and will NOT go home today. He had chest pain today and all he wants to do is sleep.
Update on baby Carlee: She's out of surgery in Ann Arbor and they repaired her shunt. Her mom, Amanda called Suzie as soon as they were done.
Tuesday, July 22, 2008
Hopefully Patti will have the professional photos up soon on her website. Can't wait to see them!
Just wanted to say thanks to all those who made my phone blow up today and all the visitors Lindsay and Bill had today. Sorry to those of you that I was unable to get back to, especially you Elaine. I hope you all know that we all appreciate the messages you all leave both on the blog and on our phones.
I'm happy to report that both are doing well. Lindsay looks great and has had her feeding tube changed to her nose which makes her more comfortable. They are planning a feeding study for Lindsay to figure out why this happened. Her pediatric cardiologist said today that he, too, was surprised that Lindsay was laying there. He indicated that most kids don't make it through what happened to her. This just proves that all our prayers are working and that we must keep it up!
Bill says that he feels like he got run over by a truck, but other than that, I truly feel that he is recoverable if he puts his mind into his PT. It's making it a lot easier for all of us that he and Lindsay are both at Bronson so we can go back and forth between rooms. Hopefully Bill can continue his recuperation at home and can start that as early as tomorrow. The Dr's are still trying to pinpoint the exact cause of the stroke.
We're concerned about our other little heart baby, Carlee. She was airlifted back to Ann Arbor today with a serious concern about her shunt. Thank you all for adding Carlee and her family to our prayers.
Well, for those of you on the west coast, you're getting this update a little earlier because I'm still at the hospital. I'll peek in on our little princess before I go home, but again, I can tell you that she looks wonderful!
Monday, July 21, 2008
Sunday, July 20, 2008
10:00pm and all's well. Lindsay is resting comfortably and Suzie and JR went home to have a "normal" evening with the boys while I stayed for a while longer with Lindsay. It's not like there is anything I can do for her, but I just want to be here and tell her that we all love her so much.
We don't know what's in store for Suzie and JR for the rest of the week or so, so I'm glad they'd go home, get a good nights rest, and have quality time with Cole and Cruz. Suzie called and said that it was so cute to see Cruz look around the house trying to find his baby sister.
NEWS FLASH........just got a call from Suzie and she's bringing Cole up so that he can see Lindsay. He isn't understanding that she, all of a sudden, isn't there at the house and had a little breakdown. But, he wanted to make sure it wasn't a long drive! Hopefully this will make him sleep better tonight.
Heart hugs to all,
Talk again very soon-
Saturday, July 19, 2008
Thanks Steve and Tina for coming to visit tonight. That meant a lot to us and please know that we love you both very much!
Good night and Heart hugs and love to everyone. Talk again tomorrow-
Please allow me to fill in some of the blanks........
Once again, we can all be so proud of Suzie and JR for their quick response last night. The pediatric cardialogist used the word "LUCKY" to us after Lindsay was stablized. We had Dr's working on her at Bronson that were knowledgable in HLHS, for which we are thankful. As I arrived at the hospital in the trauma unit, I counted 9 Dr's and nurses working on Lindsay.
Our families have been through a lot lately and we continue our faith to know that God doesn't give us more than we can handle and that, as Grandma Lindsay always said, "things happen for a reason".
Case in point.......I had decided to go on a run with my hubby out to Reno Thursday to pick up a coach and drive it back to Coachmen in IN......Bill, my hubby, was so excited that I was going to go with him on this trip, 'cause after all I've not gone since Lindsay was born. But he woke up that morning with a headache and nausea, followed by vomiting and vertigo. He felt better by the time we left for the South Bend airport, we boarded the plane, and then there was a seating problem with a lady and a 2 year old child. We helped out by adjusting where we were seated, but Bill told the flight attendent that he still wanted on the isle because he wasn't feeling well. WELL, to make a long story short, he was removed from the flight and not allowed to fly until he recieved medical attention. We returned to Kalamazoo and spent the night at Bronson to get him checked out. He's resting at home and has a follow up appt. on Monday..........Point being, for those of you that know me, I LOVE to travel anywhere!!! And, I took this change of plans very well, after all, "things happen for a reason". And what a reason........(I mean other than my husband's health.)
Suzie had a Dr's appt. with Dr. Bob on Friday so I was able to help out and watch Lindsay all day while she did that and went to work to do taxes that were due for the business. The only thing I noticed about Lindsay during the day was that she was cold. I kept her wrapped as she slept and had her feedings. When Suzie arrived home, we gave her a bath and during that she expelled her feeding in the bath water. We joked a little about giving her a milk bath, redressed her and proceeded to feed her again, which went just fine. I left their home about 6:00pm and Lindsay was doing just fine. It was shortly after that that things deteriated quickly.
Dr. Bob and Stephanie saw the lights flashing from across the park and decided to call to see if they needed to come and get the boys. A very quick response from JR resulted in them swiftly doing just that. So, the boys spent the night at their home with their 3 children and the update from Steph was that Cole wanted to sleep with Cruz (how cute). WHAT FRIENDS Suzie and JR have. The boys are now going with JR's brother Ken and his wife Suzan, so they're taken care of for the time being. We'll go in to care mode for them next week, Aunt Carole has already checked in and, as always, is on call anytime they need her. What would they do without Aunt Carole and Uncle Robb? Once again I will be available for whatever they need me for because I'm in town and because "things happen for a reason." Thank you so much Grandma Lindsay for teaching me that!
Suzie and JR have gone home for a shower and to pick up a few things while I'm sitting with Lindsay. I spent the night here at the hospital while Suzie and JR slept in the room with Lindsay. The staff has been GREAT and allowed us to stay with Lindsay through every proceedure except the x-ray where we were just outside the door. Suzie and JR's knowledge, calmness under such stress, and love for each other is outstanding and I'm sure that shows immediately to all the staff involved!!! They could answer all the medical questions confidently and quickly so the Dr's knew exactly what they were dealing with.
To observe Suzie and JR looking over their daughter is one of the most precious things I have ever seen. You can just feel the love overwhelming the room.
Lindsay will be kept in the Pediatric ICU at Bronson until further notice and we expect that to be transport to the U of M Hospital. We'll continue to update as things progress.
Our prayers continue to be answered and we appreciate you all participating in our prayers.
Love and Heart Hugs to all,
All for now. Keep praying!
With Love, Suzie
I will update a little later when we know even more but the good news is that everything with her surgery looks great so we didn't have to be helicoptered to U of M last night. If she would have had an issue, that's where we would be today.
Dear Lord, please be with Lindsay and help her heal today. You do this for a reason so I am believing and praying that she will be just fine.
Please pray for Lindsay even harder than before!
Suzie and Jr
Tuesday, July 15, 2008
As you can tell by the picture, she has started drama classes. :-)This picture is for you Aunt Dani. I just love my new summer dress!
Love you all and will keep the updates coming!
Monday, July 14, 2008
Natalie wanted to spend some time with Lindsay during the week last week. Lindsay just wasn't in the mood to play. Maybe next time Natalie! Can't wait for you to over again!
The Grooten gang came over yesterday to visit. They were all excited to hold Lindsay. They spoiled her some more with presents and brought us lunch. Thanks guys, it was yummy!!!!
Papa and Grandma "Yum Yum" (Lumbard) said they were going through baby withdrawal so they stopped over for a visit today. Aunt Carole was the chauffeur and got to give her some lovin too. Lindsay even gave grandma a nice smile. So sweet.
Lindsay goes to the cardiologist tomorrow so I will let everyone know the results of the echo cardiogram and the EKG. Otherwise, she is still eating well and seems to be very comfortable all of the time. We are very blessed to have another content baby.
Heart hugs and Love~
Friday, July 11, 2008
We have an appointment on Tuesday with the cardiologist and Lindsay will have an echocardiogram and EKG done to check things out. We are crossing our fingers that we don't come across any problems or concerns.
Today was a great day at home with the family and then this afternoon we went to see Patti for our photo session. I just can't wait to see what wonderful photos that Patti was able to capture. She said some will be posted on her blog this evening sometime. So check her blog out to get a sneak peak.
We have had a few people ask when her next surgery will be. Well, the answer to that is that we don't know either. It will depend really on when Lindsay shows signs that she is ready. The second is typically performed between 4 and 6 months of age so we are thinking this might take place late fall. Just too early to say right now.
Have a great weekend!
Thursday, July 10, 2008
We will be forever grateful to he and his staff for finding Lindsay's problem ahead of time. Can you tell that we are Michigan fans?
Grandma "Fishy" (Dean) holding Lindsay for the first time. I don't think she could stop smiling!
Grandma Smith also got her turn. It is so good to have our little princess home to hold all the time!
I just couldn't stop taking pictures of her in that cute little Monkey outfit. I will update again soon, I promise. We visit my friend Patti on Friday for some professional pictures so I can't wait to share those as well. (they will be posted within a few weeks and you can view them by clicking on the link on the right.....Portraits by Patti)
Again, keep praying and know that we take it day by day and sometimes, minute by minute but we are staying strong and believing that we will have our little Princess for a very long time. She is definately our miracle baby!
One more thing........
HAPPY BIRTHDAY BILL!!!!
Lindsay has really settled in nicely here at home and now that the boys are back, we really feel like a family again.
Aunt Carole was anxious to get her hands on little Lindsay.
And so was Cruz! He just loves his sister and really helps me out especially if she wants her pacifier.......or even if she doesn't. :-)
This is Lindsay all ready to leave from the hospital. She was just as anxious as Mom and Dad I think. No one would ever know that this is her about 10 minutes after they shut every single one of her monitors off. Yes, I was a little nervous to say the least!
On one of our walks, we visited the Winter's. Garrett and William were so excited to get their "sanitized" hands on Lindsay. Notice the tube.....she was having a bad feeding day that day and I put the NG tube back in for a little while. Since Sunday, she has been doing beautifully and not acting too terribly tired after her whole 60 cc'c of formula. Maybe in the next week or so we can up the amount that she gets but for now she automatically stops when that amount is about done. Meds are getting easier to get ready. I think it took me about 20 minutes the very first time because I kept looking at the bottle 4 and 5 times to make sure it was the right one, the right amount, and the right time of day to be giving it to her. All in all, we have had a great almost first week at home with Lindsay. We have been very fortunate to have such giving people in our lives to deliver meals and clean our house. We couldn't have asked for better family and friends as we do.
On another note, we had a death in the family this week. This past Monday, actually Tuesday early morning, we lost my Uncle Les. (for those of you that kind of know the family, it is my Grandpa Lumbard's brother) Thankfully he wasn't in any pain and was able to leave this earth quickly without suffering. Funeral is Thursday. I know that he was greeted with open arms in heaven.
Well, because I could only figure out how to post five pictures in a single posting, keep posted and look at the next post for more pictures since our arrival home.
Thanks again for being stalkers :-) and please keep the prayers coming! We are certainly not out of the woods yet, but we have a darned good start and Lindsay is a fighter for sure! The nurse comes to the house again tomorrow and hopefully gives us a good report once again.
Heart Hugs and Love,
Monday, July 7, 2008
Visitors have been trickling in.....that's been great you guys.
JR is off work all week and the boys get back tomorrow night from their camping trip. Mom and dad can hardly wait!
So, all in all Suzie and JR are getting their routine down with feedings, some with the bottle and some by tube depending on Lindsay's mood, but their really not having issues with it.
Believe it or not, I came down with a bug so I've had to stay away. Yes, that's right, even grandma can't be around Lindsay with as much as a sore throat. They can't even take her out in public because she hasn't had any of her immunizations.
So I'm still working the travel from home and hopefully I'll be able to go back over in the next day or two. I'm going through withdrawls.
Suzie stopped over last night and picked up the camera cord to the computer, so hopefully we'll see some updated pictures soon. (hint, hint)
We're still keeping up with another little baby (Carlee) that had her surgery on the same day as Lindsay. She's still in moderate care at U of M. We became quite attached to Carlee and her family going through the exact same thing except they didn't know ahead of time about Carlee's condition. (You go Dr. Bob!!!!!) I'm so glad Suzie and JR had time to prepare. Their baby was air lifted from Grand Rapids to U of M. (Once again, you go Dr. Bob!!!!!) Our joint prayers are said every day.
Heart Hugs to all of you,
Thursday, July 3, 2008
Again Shannon Poortenga is the homefront coordinator, so please contact her so that we don't double up on meals. If you would like to visit the Deans, please call them first, I'm sure they'd love to see all of you. (Just not all at the same time. The party won't be until after the 2nd surgery.) It isn't like Suzie just had a baby, after all it's been 3 weeks.
Shannon's contact information is archived in May's blogs under "keeping up the Dean homefront"
Thanks and Heart Hugs to ALL OF YOU!!!!
Wednesday, July 2, 2008
We've done our time, we're go'in home...........
That is if I pee really good tonight without my diuretic. (Lindsay, that is)
Everyone keeps commenting that she doesn't look like a "heart" baby. We hate to get overly confident, but, we have to agree. She's looking and acting GREAT!!!
The nurses tell us that it's unusual for HLHS babies to feed this well. She's up to 60 cc's of formula and doing well. Suzie was given the list of perscriptions today and she said that it just looks overwhelming. I'll tell you, Suzie is quite the trooper. I'm SOOOOOOO Proud of her!!! She has learned as much as possible about caring for her daughter. I know that she had time to prepare, but she's a sponge about everything she's being told.
Ok, I know I'm grandma and all and usually grandma's brag about how beautiful their grandchildren are, but come on......
LOOK at those EYES!!!!!
Tuesday, July 1, 2008
over the last few days.
Lynn from Parchment Methodist CoOp Preschool stopped to adore God's gift to us.
Pam Wesaw peeking in on Lindsay (by the way, Pam,
I left a picture CD at Ultra Tan and Travel for you!
Maggie Geiger couldn't resist patting Lindsay's precious head. Believe me, our family isn't used to a baby with hair, dark hair at that.
Jeff Wesaw, proud father of three himself, admire Suzie and JR's creation.
It's been a joy to share this experience with all of you sharing this blog with us. The support from you all has been one of life's blessings.
Suzie went over to the hospital earlier this morning and witnessed the pulling of the chest tube. HUGE SUCCESS!!!! They used morphine on Lindsay so she's a little out right now. Don came up this morning so they're having some wonderful father/daughter time. Hopefully Lindsay will wake up so we can get some great holding pictures with grandpa and Lindsay.
Lindsay has to have an echo before discharge and that's set up. Can you believe we're looking at Thursday as a possible release date? Woo Hoo again.......A little scary for Suzie, but she has to get used to trusting her instincts and know her daughter's coloration and normal breathing. It's a huge step to ween yourself from the monitors.
I know that we all have to remind ourselves that we have two more of these to go through, but, it will be so nice to have this one behind us, have a bit of normal at home before coming back.