Saturday, November 29, 2008
I will post more photos of Lindsay later this afternoon.
Love you all!
Friday, November 28, 2008
Plants will be ready for pickup Dec. 6th 1:00 pm -4:00 pm at the Dean's in Parchment.
To view selections of plant colors and sizes, please visit the fund raising icon on the right.
The Lindsay Dean Heart Fund
I was able to hold and feed Lindsay while Suzie, JR, Cole, and Cruz took a much needed nap. I actually was able to give Lindsay a bottle (something I haven't been able to do since Sept.) Bill cooked the turkey and I did the fixings and we took it over to the RM House so the Dean's have actual authentic left overs.
We met up with Terry Vanderberg on our way over, to intercept a cute basket that Pam and Allison had made up. Lindsay now has her own personal "Princess Bible". Yes, Pam and Allison found this beautiful Bible that was a perfect gift for our Princess Lindsay. Suzie was ecstatic!
We were able to look in on Carlee, who is doing fantastic! Carlee's mom had an extra little turkey outfit so she shared with Lindsay. Our two "little turkeys" looked adorable yesterday.
This visit made my heart feel so warm with the way Lindsay looked and acted. We truly have her back to herself again and it was a much better drive home this week because of that.
We weren't able to look in on Connor's parents as they are bedside most of the time. Please extend prayers to them during this time. We've been there, hanging on by a thread and these heart families are truly bonded.
This Thanksgiving was so non-traditional, taking turns to go down the hall for some eats, not sitting together at a table giving thanks, but, it will remain one of the most memorable for me. Lindsay has surely shown our family what we're all thankful for.
Heart hugs to all and I hope you all had a blessed Thanksgiving, perhaps looking at it slightly different this year because of Lindsay.
Thursday, November 27, 2008
This Thanksgiving I really can't even put into words what I'm thankful for because it is so much! This is probably why I'm such a blubbery mess these days because you can't help to think that this could be our only Thanksgiving with Lindsay. Of course you never want that to be true and you want to have many, many more, but then I think of all of the other heart families out there that don't have their babies to love during the holidays and I feel incredibly blessed to still have her here on earth. Every day is a gift and we try to make each day the best it can be because we cannot predict what will happen tomorrow. As we are thinking of that, please put Connor in your prayers tonight. He is linked on the right. He is not doing very well and doctors are not giving him a very good prognosis. We have become good friends with his parents, Michelle and Eric, and would like you to include them in your prayers. I can't imagine having to make "the" decision but here in "heart world", that can happen at any moment and I pray that God is guiding them through this and making it easier for them.
I am typing tonight with all of my boys SNORING!! in the background! ha ha I love having them all in one place and look forward to some wonderful family time this Thanksgiving. We have so many things to be thankful for and all of you are included! We thank you for being apart of our lives and caring so much for our family. We wouldn't have made it this far without your support. We are eternally grateful. May everyone have a blessed Thanksgiving and please be safe!
Love to you all,
Monday, November 24, 2008
Sunday, November 23, 2008
Well, it didn't go that far but I'm obviously still revved up about it since I'm posting this at 2:15 in the morning!!!! WHew!
Jr and I are leaving for Kalamazoo around 2pm tomorrow. We will get the boys for a night so that will be great to have them. Cole has a Thanksgiving program at school that we can't miss on Monday and then I'm back to Ann Arbor Monday afternoon. Jr will be home with the boys through Wednesday and then all three will be joining me in A2 for the weekend. Hoping we can keep them entertained enough to last that long. Otherwise, Jr will just go back earlier if need be. He is then back to work for a while.
Thanks for letting me vent tonight........keep praying and pray for our sanity....I think we have been here way to long and it just might be getting to us! :-)
Saturday, November 22, 2008
Wednesday, November 19, 2008
We had dinner tonight with Jason, Amanda, and Carlee. They are here for Carlee's hemi-fontan which will be on Friday. They had to come early for an echo and the cath lab prior to surgery. So good to see familiar faces again!
We left tonight and Lindsay was actually sleeping!!!!!! YEAH! The girl is finally getting some rest and hopefully more of her normal tomorrow. Can't wait to get my hands on her again. Sweet dreams and praying that her new heart comes soon!
Tuesday, November 18, 2008
Wolverine vs. Buckeye Challenge for Life
The University of Michigan is taking on Ohio State University again this year, to see which school can sign up the most people to its state organ donor registry before noon on November 21. The winning school gets the trophy and bragging rights for the next year.
You can help Michigan beat Ohio State by signing up on the Michigan Organ Donor Registry.
Check out the scoreboard on the Go Blue page, and encourage your classmates, friends and family to sign up, too!
Suzie and JR are waiting for an update from the transplant Dr's as to when they think they can start this chemo and she will explain this to all of us when that is to start.
The Jone's arrive tonight with Carlee which will be a great sideline for the Deans. Even though they will both be preoccupied with their daughters, maybe they can have breaks together and have some "fun" if that's at all possible.
Sunday, November 16, 2008
Lindsay's move into moderate care was postponed yesterday, but she was moved there today by the time we arrived. She was unusually fussy, so they were trying to figure out what was up with that. Many things could be to blame, they just want to find out right away what it is. I enjoyed watching my daughter (you know with the honorary RN degree) point a few things out to the new nurses in charge. She really knows her daughter! Then, we witnessed how Suzie and JR talk things out about what to do. What a strong couple they are. Their plan is to both stay for the week and JR come home next Sunday to work the next week.
I did get to hold Lindsay for the first time in TWO MONTHS! I was all garbed up with plastic but enjoyed it never the less.
I know all you stalkers hate voids, so I just thought I'd write tonight just to let you know what's happening.
Saturday, November 15, 2008
Friday, November 14, 2008
For those of you that need your daily hit on Lindsay news.... She had a new pic line put in yesterday afternoon and the Dr's have decided that they will re-evaluate her today. It seems her stats are so good, that they're going to make a decision what direction to head at this point. The Princess might be ready for the chemo to begin to prep her for a transplant. After their all day pow wow, we'll get an update what's in store for the Princess.
Fundraising is off to a fantastic start. Beginning with the bake sale of all bake sales, the committee is selling poinsettias like crazy which includes churches and banks that will be displaying Lindsay Poinsettias this year. Hundreds have already been ordered!
If any of you want to participate by getting your church or business involved, please let us know at firstname.lastname@example.org Orders must be in by Dec. 1st with Delivery Dec. 6th.
Please join us on the link to the other blog (Sharing the Love) to keep informed on the fundraising efforts. You won't believe what we're up to next.
The Lindsay Dean Heart Fund Committee
Wednesday, November 12, 2008
This will take you to a separate section with updates of all the fantastic fundraising events going on to help Lindsay's family.
Check back often because we have some GREAT events in the planning!
As you might well imagine after 5 weeks in Ann Arbor in intensive care, 5 open heart surgeries, and a heart transplant in the future, it's our time to help!
The committee for the Lindsay Dean Heart Fund is open to any and all of you that would like to help this family in their time of need.
We also welcome any ideas you might have as a fundraising event.
Tuesday, November 11, 2008
Friday, November 7, 2008
Wednesday, November 5, 2008
It is an even bigger day tomorrow because ALL of my boys are coming to Ann Arbor for the weekend. Yes, JR is bringing Cole and Cruz. Hopefully the weather will cooperate. If not, I really need to put my thinking cap on for some fun things to do with them. Cruz keeps asking about "Lily", so he will be excited to see her...and better yet, without her vent!
I had surprise visitors today.....Dad, Sue, and Sara came to visit. What a nice surprise. I just happened to open my eyes after starting to dose off in the rocking chair at Lindsay's bedside and there was Dad. They had to get their "fix". She opened her eyes while they were here. What a nice treat today.
Well, need to get to my emails since I haven't checked them ALL day. I will post tomorrow with photos of the princess.....tubeless!
Tuesday, November 4, 2008
Yes, for all of you Kalamazoo people, please save a few copies of that article for us. I need to get one laminated and one for her memory box. Thanks! Man, is she turning heads or what?!!