Monday, January 19, 2009

As close to perfect as it gets..........

Lindsay had a wonderful day. I worked a little from the RMH this morning and then went to see the princess at around 12:30 and was greeted with a huge smile when I walked through the door. Trust me, I melted a little when she did that. She was finishing up her bottle and then stayed up a little after that to play with me. She almost has a little giggle now when she smiles so big. The rest of the afternoon we sat in the rocking chair and she had her head on my shoulder for a good 2 hours. Needless to say, I was in heaven!! She loves to lay on her belly so it is perfect for her to lay on my chest like that. She was awake when I left to come back here for dinner so I'm hoping she naps a little while I'm away so we can have some more play time when I return. Praying that the wireless connection will work soon because I have some really good pictures to post from today.
Next Monday will be her blood draw to see if she is ready for another dose of rituxin. Please pray that she keeps feeling well so that these doses can be done every two weeks as scheduled. The more we can do, the better the chances of finding that perfect heart match!!
Love to you all!
Love, Suzie

9 comments:

The Butcher Family said...

I praise God for beautiful days like today! Looking forward to new pictures, too...

Love you~ Rebecca

Stephanie said...

Wonderful news!!! Praying for endless great days for Lindsay!!!! Love to hear that she's happy and doing good! Can't wait to see pics.

Maggie Geiger said...

So nice to hear that the Princess is doing well. Those times will be the ones that get you through! We will be waiting for the new pictures!

Love,
Dan,Maggie,Ben,& Alli Geiger

Elaine said...

What more could we ask than a perfect day for Lindsay...I'm with Steph...praying for endless perfect days for our princess.

I am so excited to come visit on Wed and am praying the weather holds...I want to have a nice visit with you and some play time with Lindsay...tell her there is a new toy coming!

Love and hugs, Elaine

Anonymous said...

So glad to hear Lindsay had such a good day, can't wait to see more pictures! Mary ( Rettas friend)

aimee gillespie said...

So glad to see that Lindsay is all smiles again. Plus, giggles? That must just melt your heart. Mine's melting and I'm 100+ miles away! We'll be praying that she continues to have good days so that she can get the medication she needs and can find her perfect heart match!

Love,
Aimee & Family

The Hands said...

So glad your day with Lindsay was "snuggly" good! Joshua got his heart last night-even at being 95% sensitized. Totally a God Thing! Dr. Law said it was like they were related. Maybe this heart dropped out of the sky! This gives me renewed faith and hope as we pray for your little pricess's new heart! Have a wonderful day!
Angie

Krissy said...

Lindsays smile is SO beautiful! I swear there is no better feeling than that of your baby's head on your shoulder. It is so natural and peaceful. I will bring Sofi by again to see her. In case you may not know, the hospital has free wireless everywhere. You can bring your laptop to Lindsay's bedside, and it's much faster than RMH's. See you soon!
Love Krissy & Sofia

Stephanie Winter said...

Praying for a good week with Lindsay and a good weekend with the boys! Miss you guys! Can't wait to hear more giggle stories!
love,
steph