Monday, January 12, 2009

Trying to get things accomplished

This one is from last week but too cute not to add!!
So happy after bath time and getting a bottle.

Before bath time. She was sleeping so good on her belly! First time I have seen this. Normally she is on her side but seemed to make it all the way over today. Have I mentioned that she is cute??


Today was a day of going back and fourth with doctors and trying to get a plan for Lindsay made so that she can be moved to Moderate Care tomorrow. If they don't come up with something during rounds in the morning, then she will stay but they need one more bed tomorrow in the ICU because they have surgeries and need the space. It is either Lindsay or another baby but I am told that Lindsay is more stable. So, again we will probably change our address. In the meantime, I mentioned this morning that since we are here, can she get her rituxin dose. The answer was, "that is a good idea". So, she got it! That was simple enough. Why can't everything be like that?!!! She did well during the injection and no reactions as like last time. Please pray that this dose does some good so that she can have an easier time getting a tissue match for a heart. She looked so good today and I left tonight after feeding her and giving her a bath. Needless to say, I was in heaven!!! I found an outfit, that wasn't left in moderate care, and put it on her. We are still missing the bows, but she still looks adorable without one in. Not really looking forward to the move tomorrow because she is so happy here but sicker babies need to have her space. All for now...
Love, Suzie

9 comments:

Elaine said...

I just wrote you on FB...I can't come tomorrow because of the weather but maybe Wed...

These pictures are so precious...what an absolutely beautiful child! The sitting up one is sooo cute...something about her sitting there naked with the pink bow just makes me laugh!

I NEED to see you...don't know why...it's just time!! I think I'll try to call you tomorrow...I assume that you just let it go to vm if the call is at an inapproiate time! (like when you are sleeping!)

Love you, Elaine

Steve said...

Bows... what are those? She is adorable bows or no bows! It's those beautiful blue eyes and that ever-present smile that melt my heart!

We sure miss you guys, and continue to pray that the perfect heart comes for Lindsay soon! Even Alex remembers to ask Jesus every night to watch over and heal the "heart babies."

So glad you had a chance to help in Cole's classroom! I'm not able to do much in my boys' schools anymore these days.

Hugs and kisses,

Michelle

Melissa said...

I have been following and praying for you for a while now and I have to say that YES she IS the cutest thing I have ever seen. How could anyone not love her after seeing these pictures. SO precious!!! I'll keep up the praying!!!!

P.S. Be sure to tell Lindsay that she has a little boy friend in Georgia. My 1 year old loves looking at your blog. I guess he thinks she is cute to.

The Simmons Family said...

Praying that the Rixtuxin dose works!!! The pictures are ADORABLE!

Andrea

The Butcher Family said...

LOVE the pictures! They answered a little question for me...you'll see soon enough!
Praying for the Princess!

Love you~ Rebecca

Our Family said...

So glad that Lindsay is doing better. I hope you guys are staying warm up there--my husband is going up to Michigan in February and is pretty nervous about the cold weather (can you tell we grew up in Texas?). You guys are always in our prayers--take care and make sure to get some rest!

Bernie

jen hnilo said...

Glad to see things are going well. Something about a sleepy baby after a bath that is so precious. Those pictures are adorable!

Maggie Geiger said...

Looking most precious! I just can't believe how big she is getting. Praying that her dose is accepted well, and that she can ake more progress.

Love,
Dan,Maggie,Ben,& Alli Geiger

Stephanie said...

She is beautiful even without the bows!!!! Absolutely perfect! Continuing to pray for Lindsay and her angel heart!