when I can take my baby home. Today was a rough for me mentally. I think the hospital is getting to me and I am realizing that we have been here exactly 101 days! I hadn't counted until now because it would just make me crazy knowing how long it has been. The main struggle today was because Lindsay had such an amazing day, and because of that you would never know that she was a very ill child, that it was very hard for me to not pack up her stuff and tell everyone, "We are outta here!" I saw about four babies go home today and Daddy's bringing in the car seats with huge smiles on their faces. Why shouldn't they be happy? They get to bring their baby home! OK, Suzie, reality check. Some people have babies and don't EVER bring them home. What are you whining about? You still have your baby to love and cuddle with. Who cares what proximity it may be in. Well, just one of those days that HOPE has gotten the best of me and just keep praying for that one HUGE phone call to say that your daughter's heart is here and it is prefect and she will live to be 99 years old! Well, maybe not that long but I think you all know what I mean. Thanks for letting me journal my day!
Lindsay will be spoken about in the morning regarding her next dose of Retuxin. In fact, one of the PCTU docs came around tonight and I put a bug in his ear to find out when. So, I will keep you all posted. I wouldn't be surprised if it were tomorrow. One other development is that she has developed thrush. No wonder the kid didn't want anything to do with her bottle yesterday! The doctors discovered this on morning rounds and is now on nystantin to take care of it. Should only be a day or so and that will be cleared up. It is like an adult having a sore throat and the medicine is her cough drop. Meanwhile, she is being tube fed. I also spoke with the nurse this evening and I mentioned something about starting her on cereal. Heck, worth asking ,right? She said that she didn't see why not because she is already taking formula that has rice in it so she wouldn't be allergic to it. So, maybe we can do that soon. AHHH, the little things in life that make me happy. :-)
As for new pics of Lindsay.....I made the order at Walgreen's and just couldn't get there tonight before they closed so I will have new pics tomorrow. I promise!
Keep praying for miracles!