Lindsay has been rockin and rollin with her sprints and the nitric is OFF!!! Pulmonary pressures are still a little higher but knowing that she can tolerate the sildenifil, those should go down without a problem. Two IV lines have been removed and tomorrow her cardiac lines will be removed before she is extubated. Extubation means that we are able to hold her tomorrow!!!!! We just can't begin to tell you how wonderful she looks. Please keep praying that things continue on the right track. Maybe by the end of this week, we will be on the floor! We do know though that we are here for at least another week and a half because we can't leave until she has her two week biopsy to make sure that she is not in rejection. So, also include in your prayers that she tolerates all of her anti-rejection meds and the test results come back negative! All for now. Tomorrow I hope to post a picture of the princess awake and without her breathing tube. Love to you all!
Suzie
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27 comments:
Praying for those meds to work and for her body to full accept her new heart!
Also praying for a picture tomorrow of the princess in your arms! What's it like to hold royalty? :)
Hugs!
That is great news! I was checking for updates earlier when Owen and his friend Sage came in. Owen told her "that baby Lindsay she had a broken heart but now she got a new one so now she can go home with her mommy and daddy" So cute and will be true before you know it! We're hoping and praying for an uneventful recovery.
Love,
Amanda
I can not wait to see her. We have been thinking and praying for Lindsay and you whole family this whole weekend. So happy to hear all of the great news. Looks like the Princess knows just what to do!! Keep it up sweet girl!
What great news were all praying! Aunt Retta & Mary
A truly amazing little girl - and so are her parents. We continue with our prayers for all of you.
Sallees & Nevilles
Wow, Wow, Wow! What amazing news, Suzie! She certainly is a fighter and a living witness to many answered prayers! Enjoy holding her tomorrow and don't forget to take pictures :) Again, WOW! Lots of love and continued prayers for the princess... Danielle
Praying for a smooth exubation!! Lindsay, you have given me SO MUCH HOPE this week! I'm looking forward to the pictures of you in mommy's lap, tube free and PINK!! :)
Andrea
I was led to your blog by another reader who is praying for Lindsay. I will start praying now and will continue as she experiences her extubation tomorrow. Go Lindsay girl!
I'm feverishly working on her blankie so I can get it to you soon. I'm glad she continues to do well.
Not only are we thrilled for Lindsay; we'll never quit praying for her...but it also gives our family so much hope for Owen...those perfect hearts DO exist and God will get them to our sick babies when they are ready on God's time frame. You sharing your story on this blog gives many families hope & with each child's gift we learn more and more and we will have fewer Angel babies! I hope you and my daughter, Andrea meet some day! Lindsay and Owen can swap stories:) :) :)have fun holding her tomorrow! Owen's Gramma Vicki
We are so glad to hear that Lindsay is continuing to stay strong. We can't wait until she is able to go home. Hope all is well at the Rondald McDonald House. I watered your plant today. I hope you don't mind. Lindsay is such a brave little girl. She is such an inspiration.
Tara Strakalaitis and Family
We are praying for the Princess and hoping today is full of WOW moments for y'all!!!
Can't wait to see that dollbaby! She is so strong and we believe that your patience will be rewarded with the perfect heart for her (with ZERO rejection)!
Love you, friend~ Rebecca
Suzie and Jr., I can't imagine the excitement and anxiousness you must be feeling just to hold your baby girl again. It seems ,atleast from this end, that this is the heart she was waiting for! Grace is just sitting on pins and needles to be able to see the princess in person instead of on a 15" screen. Gee, you guys are going to have to take numbers for visitors after you get home. You'll be the house with people outside saying "open,open" hee hee!
wonderful updates,thank you!
hope you're catching up on some much needed rest!
Tiffany
Saw you on the news this morning, the princess is a celebrity! Thanks for keeping us updated on this blog. Your entire family is in my prayers. Jean Eldred (and family)
Oh, the goosebumps I'm getting! She is just very determined to get home soon, isn't she? And I couldn't be happier about being up there TO SEE YOU OFF!!! (Even better than being there when you get "the call.") We want to see how good you say she looks, so be sure to post new pictures! Enjoy holding your precious babe!
Love, Michelle
http://www.carepages.com/carepages/ZacharyJohn
Following each step with breathless hope.......have a beautiful day watching your beautiful girl gain health and a fulfilled promise.
Hugs and a wish to just touch and soothe your minds and hearts.
xox
Kyle
Suzie - This is the best news ever!!! Your family has been in my thoughts even though I'm so far away down here! Lindsay is just precious and a real blessing! My heart just melts every time I see her new pics on your webpage! Hugs and kisses all around!
Suzie & JR I can't tell you how excited we are for you all! Lindsay is quite the fighter. We will continue our prayers for Lindsay as we welcome Kyara home.
Love, Bunny
Go, Lindsay, go! Great to read that Lindsay is doing so great! Praying that the wonderful strides continue!
Heart hugs,
Jenni, Eric, Joshua and Alizabeth Black
CP: Joshuaspage *HLHS*
Lindsay--you go girl!!
Love hearing the great news of your progress!!
Saw Grandma Linda and your brothers at the movie theater yesterday--they are very proud of you and excited to get you home!!
Praying for the beautiful princess to have a great day!! Hopefully, she is in your arms right now. She is sooo beautiful and truly a miracle.
Under His wings,
Jeannie Fuller
cp:JeanniesJourney
PSALM 9: 1 I will give thanks to the LORD with all my heart: I will tell of all your wonders. I will be glad and rejoice in you; I will sing praise to your name, O Most High
Suzie....I am just now being able to catch up from Fridays post due to no computer at home. I don't think I even have the words to tell you how happy and relieved I am feeling today to read all of your updates. I knew she could do it. You have one AMAZING little princess!
I am so in tears and my people at work just look at me like "what is wrong with Rachel"...They are tears of joy! I love our GOD!!! He is the best!
I cant wait to see pictures of Lindsay with no tube in her mouth to breathe. What an amazing site that will be and I am so excited for you to be able to hold her for the first time with her new WHOLE heart!!!
Love and Prayers Forever,
Rachel
Hope today is going good!
Love, The Martin Family
Can't wait to see those pics of the princess without her breathing tube! Either way, though, she is beautiful! :)
I'll be praying for a smooth extubaion and for the anti-rejection meds to work, for the pulmonary pressures, and for NO rejection!
God bless,
Millie and Colin-HLHS
This is awesome news and progress! Michelle and I are constantly watching for updates and have you in our daily prayers. We are looking forward to seeing you guys next week. God bless you and little Lindsay.
Steve and Michelle
We've been praying every day since we heard Lindsay was getting a new heart. We'll continue to pray for healing. Can't wait to see you holding your baby again!
Sandy Sellers and Family
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