Wednesday, February 17, 2010

Bullet .....Dodged!!!!

The bubble gum antibiotic works wonders!! Lindsay has been feeling much better after almost a week on amoxicillon and she has actually slept through the night a couple of times without waking herself up by coughing. Praise God! Mom and Dad actually got a good nights sleep! She has that twinkle back in her eyes and you can tall she feels more like Lindsay. Whew! Really, I was afraid she would have to get admitted. Pneumonia is no joke, especially with transplant babies! The other excitement is that now she is totally off of her magnesium supplement, she no longer has loose stools!!! Ok, for most, that might not sound like a huge deal but man, can I tell you how nice it is to not have to change her clothes at least 3 or 4 times a day because the diaper wasn't able to hold it all!! Yup, don't miss that at all!!! THANK YOU DR. G!!!!
Lindsay grew her vocabulary this week too. She now says night night, Cole (comes out coe), and gabba gabba. (as in YOOOO Gabba Gabba!!!) Her favorite show is still Wow Wow Wubbzy but another strong contender as favorite is Nei hao, Kai-Lan. The girl LOVES that show. We found a Kai Lan doll for her for Valentines Day. She has it in her hands the whole day! I can't even begin to tell you how amazing it is that she is becoming more "normal". She is requiring less and less medication because her body is "getting in the groove". We are so grateful because that means her heart is working perfectly and has adapted to her body very well.
As some of you may know already from reading my facebook page, I finally did it. I wrote "the letter". I chose Valentine's Day to do it and we feel really good about it. We hope and pray that the donor's family will read it and respond but in the same breath, respect their decision if they choose not to. Thanking God and them everyday that we have the opportunity to update the blog to tell of the princess' doings. Maybe someday they will read it too.
That's all for now with my update. I will post new pictures next time!
Love, Suzie

Wednesday, February 10, 2010

Uh oh........

Update: Got a phone call from Meg a little bit ago and the chest xray from yesterday indicated slight pneumonia. Crap! Off to the pharmacy I go.........
At least that explains why her cough has lasted so long. Now maybe the princess can sleep allot better! YAY!
Please pray that it goes AWAY!!!!

What a great day!

Lindsay was this way the WHOLE ride home! Yes, the 1 1/2 hour ride took us 3 LONG hours yesterday because of all the snow and crazy people! So good to be home!
Before Versed......

After Versed!

She's a trooper!

Lindsay and her girls ;-)

Yesterday Lindsay had her clinic visit at the hospital and things couldn't have gone better! She passed everything with flying colors! Dr. G said, "She looks absolutely fabulous!" Now, coming from him, I could have just kissed him when he said that! Her echo looked really great and so did her EKG except for her still elevated heart rate. So, because of that, they did increase her atenolol and then I need to have Dr. Loker here in town listen to her next week to see if that dose is making a difference. We had to give the princess a little versed for her echo this time around. She is getting bigger and ever so sassy! So, needless to say, the drugs did the trick and she was as mellow as could be during the exam. She even had a lick of a sucker for the first time. That worked pretty good until Disney Channel was turned on the tv! ;-) Dr. G also discontinued her magnesium supplement and gave the ok to...............REMOVE HER G-TUBE!!!!!! Yes folks, the princess is TUBE FREE!!!!!! Again with the kiss.....ha ha ha! She weighs a wooping 22 pounds 10 ounces and is a healthy little girl. (did i just write what I think I did??) Healthy?? I could just cry! The Lord gave her to us and is overflowing us with the joy of being able to have her to hold today. We are blessed beyond words! Thank you! Thank you! Thank you!
We also got the opportunity to visit with three of our favorite people.....Megan, Mindy, and Sarah. They took time to come down and visit us yesterday. They love her like she was their own and we love them for that! It was so great to see them! Too bad Lindsay didn't see them. She had just fallen asleep and missed the whole darn thing! Oh, well. She was so tired and needed the sleep after a fun filled morning and afternoon. At some point the 5th floor of the hospital will be healthy enough to come up there and visit. Right now is just too risky. Hoping to in order to see all the rest of the staff that we miss so much!
On another note, please send your prayers up for Tommy. He is having some GI issues and we pray that they figure out what is going on with him. We love you buddy and I hope this gets resolved soon! Also, please continue to pray for Lindsay's little heart sister, Lilliana. She is still having trouble and needs super strength prayers to be said.
Thank you once again for all of your prayers and support. You mean so much more than we could ever express to us! Yay for good news!
Heart Blessings~

Friday, February 5, 2010

Extra Prayers............

Attention all Lindsay Prayer Warriors!!!!! Lilliana now has pneumonia. Please send those extra prayers above so that she gets better soon!
We love you princess Lilli!!!!