Friday, December 11, 2009

Happy 1/2 Birthday Princess!

My personal favorite ;-) She is growing too fast!!!!! Annabelle would be so proud of my bow!
Here ya go Mandy! The princess has a little "southern bell" in her! ;-) And I love it! We even went with a smocked christmas dress too. (The red one in the other pics.) Enjoy!

So sweet!


Heart......melting...........!



" You said what"?




Hey! Come back here................





Where's Lindsay? PEEK!






Precious.

Today Lindsay is 18 months old and her heart is 6 months (as of the 5th anyway). Can you believe it?!! Emotional isn't the word to describe what we are gong through! So grateful, humbled, and blessed to be able to see this day and the days ahead in her lifetime. Lindsay of course is crawling now and getting speedier by the day. Let's just say the gates have been busted out of storage! ;-) She is very good at pulling herself up and if i were a betting woman, I would bet that she will be walking by February. We shall see! Lindsay is doing better with real food and has been totally weened from her thickened formula. Now that is a HUGE step! It was a little nerve wracking going to just plain Nutren Junior. I was waiting for the throw to happen at any moment after I fed her. But, it didn't! SOOOO grateful. Amazing what a good ticker can do. Lindsay hasn't puked for almost 3 months now so I think we are over that whole phase in her "sick heart" life. Her last clinic visit was in early November and Dr Gajarski said that she looked incredible and was so happy with how she was improving. No talk yet of a biopsy which is phenomenal! I'm sure it will come eventually, but for the time being, we will take it! Lindsay is definitely developing her own personality (yeah, like she didn't have one before......princess!! ha ha) and is starting to become a "normal" toddler. The tantrums and everything people! ha ha I will NEVER complain about that!!!!! God is good! Also, on her last clinic visit, we discussed her elevated heart rate and Dr. G discussed putting her on a Holt monitor, so that is what we did for a 24 hour period of time. It was decided that her resting heart rate was in the high 140's. Not exactly ideal but not that unheard of in a transplanted infant. So, she was put on a new medication to try and get that lowered a bit. We will find out for sure when i take her into the cardiologist here in town and check it. Maybe that will be on my list for next week.
I would like to take this opportunity to thank all of you that were able to come out to help support William and Make A Wish Michigan for Team Taylor. Although a less than desirable day weather wise, they we able to raise about $2000.00 to help to make William's wish a reality. I went out that day as well and was bummed that I missed meeting William himself, but I am sure that he is one thrilled little 5 year old! So blessed to have an organization like Make A Wish. His smile alone is worth all the effort!
Well, Christmas is almost here. (big sigh!) Again with the emotion thing..........so blessed to share this with our daughter....at home. Decorations are going up little by little......still no tree. Long story about that but we will finally have it up by the end of next week and I can't wait! Then there is the wrapping obstacle! Ugh! I should really learn to wrap as I buy! ha ha Again, NOT complaining! ;-)
Enjoy the new photos of the Princess! Once again, Patti rocked it! I will post more candids later on.
Love to you all!
Suzie

20 comments:

kayla dean said...

Glad to hear things are going well.

MERRY CHRISTMAS!!!

Melanie said...

What a precious baby girl. She is so beautiful. Merry Christmas!!

The B Family said...

Oh, Suzie...my heart just leaps for JOY for you and your amazing family! Lindsay is nothing short of ADORABLE in those pictures! I love the little pillowcase dress on her!
Praising God for your sweetheart!

Merriest of Christmases to y'all!!!

Love you dearly~ Rebecca

Tiffany Lockette said...

Oh my goodness what a blessing Lindsay is and how precious are her pictures. God is so good.

Tara said...

What a wonderful Christmas for yall!!

We are still without a tree here. I am almost dreading it with a 16 month old but maybe tomorrow we will get one.

Where did you get that pillowcase dress?? I LOVE IT!!!!

Great pictures!

Lindsay Dean said...

Tara~ My mom made it! Isn't it great?!!!

Krissy said...

Patti does excellent work! Lindsay is too cute! Thank you for sharing those with us!

Danielle @ Living Out Loud said...

Oh Suzie... my heart explodes with joy as I look at these pictures of Lindsay and realize that it has actually been 6 months since she received her new heart!

I have been thinking of Lindsay so, so often these past days as it was almost exactly at this time last year that I first read her story. (As a matter of fact, I just wrote a post on my own blog that references my experience of reading about LIndsay at this time last year!). What a difference a year makes! At this time last year, I cried so many tears as I thought about your sweet family spending the holidays in a hospital, the future so unknown and scary. This year, I find my eyes welling with tears again... this time out of pure happiness in knowing that you will be at HOME for the holidays with a healthy little girl who has inspired me (and so many others) to never give up and to believe that modern-day miracles not only CAN happen, but the DO happen! These precious, precious pictures are proof of that!

Wishing you and your family a very Merry Christmas and many, many more miracles and blessings in the New Year!

Love to you...
Danielle

Kristin said...

She is just so precious!! Love the new pictures!! Enjoy the Christmas season with your princess...and your princes! :)

Jessica said...

She is so adorable. Getting so big. I remember those days when we all were sharing a room and now look at her!!! Just amazing God is very good!!! Would you like to give me a newer photo of Lindsay for the Heart Ball video??? Love ya guys, Heart Hugs, and Blessings, Jessica
P.S. Enjoy Christmas with the Princess at home!!!

Evie's Story said...

Sweet friend,
love it, love it, Love It!! ...the dress...the bow...the precious expressions on her face...but mostly, that amazing miracle girl. Know you are treasuring every memory made this Christmas season and watching the glow and glitter reflecting in her sweet eyes. I am beyond delighted that you are home, celebrating together. We're praising the Lord with you.
(your mom did a fabulous job on that pillow case dress...and that red one - gorgeous!)

Anonymous said...

She is just gorgeous!!!!! What great memories these pictures are going to be! We still pray for your family every day!
Ann, Jeff, Evan and Finley Green

me said...

I always love to see priceless pictures of the princess! So many are my favorites. I am going to show them to my preschool class and see which one they like best. We pray for Lindsey or Winsee to get stronger and stronger each day!

Anonymous said...

What a Wonderful Christmas you will have this year!!! We are all saying "Thank you God!" The "Reason for the Season"! Enjoy the Holidays with the little ones! God Bless You All! Sara Dz

Anonymous said...

She looks great!!! Such a blessing enjoy your christmas

Michelle, Eric and Abigail

Anonymous said...

This post just put a big smile on my face! My brother passed away and we donated his heart....You have just made me feel so much better~ Merry Christmas and please do me a little favor....give her a hug from me in honor of my Brother Wesley. Thank you~

Lindsay Dean said...

Will do Susie! Bless you and your family this Christmas!

Melissa (Coffman) Gernaat said...

She is such a beautiful little girl. I hope you all have a very merry and blessed Christmas.

The Mason Family said...

Once again, GREAT PICTURES! Lindsay is such a doll and a MIRACLE! Glad to hear that all is well and that you are slipping into a 'normal' life! I pray that the next few weeks bring you MANY HAPPY TEARS and MEMORIES...wishing you and your family a very Merry CHRISTmas!!!!!! Best wishes...

Stephanie said...

I love reading all about Lindsay's amazing journey, so I have nominated you for the "tag" award on my blog. Check out my our page for more info.
By the way, I love the new pictures...can you send me a few for the new Hearts of Hope video?
Happy Holidays!

~Stephanie and Braeden

http://braedensheartjourney.blospot/