Update.........

Lindsay is scheduled for , are you ready for this one, a Nuclear Medicine Gastric Emptying Scan. Basically to check and see how quickly her stomach is emptying out, I think. ;-) This should take place sometime before 1pm tomorrow. Until then~
Suzie

GI results

Well, the decision gets even tougher on the G-tube. The test results came back negative which means that there is no refluxing. hmmmmmm. Soooooo, sounds like they are all going to sleep on this and hopefully come up with a plan in the next few days. Hopefully sooner than later! Otherwise, Lindsay has had a SUPER day! She is starting to get back to her old self by shaking her head "no", sticking out her tongue, waving, rolling over in both directions, sitting up all by herself, and all in the last two days!!!! Ok, off to do laundry and get some dinner. Ta Ta for now.
Love, Suzie

The Love for Lindsay and our family is amazing!

Check it out!
http://babybeblesseddolls.com/category_11/Give-a-Blessing.htm

Thank you Baby Be Blessed for your generosity to our family!

Happy Camper!

Well, we might actually be camping next year at this time but for now, let's just use this saying. Lindsay has had a great day today and yesterday was just as great. She has been sitting up for a little while on her own these last couple of days and we have been getting LOTS of smiles. Her focusing is continuing to improve everyday and we even had her sitting in her bumbo chair as well. She has been doing great with switching her meds for IV to oral and today was the first day on oral Lasix and has been peeing like a champ! This was the one that we worried about and so far so good with the switch and the dose! Tomorrow with probably be the day of decisions around here. They have an upper GI scheduled for in the morning so that they can make their decision and then hash it out with us and the cardiologists. That could be interesting. I will update after we come to a conclusion tomorrow. Otherwise, we are getting there and hopefully by the end of next week, as I mentioned before, we can blow this pop-stand! I'm already getting emotional...............
We had a great visit with mom and Bill yesterday and watched fireworks on tv after they left. The boys are still up in Traverse City camping with my dad and Sue and having a blast. They have been fishing, making smores, hitting a carnival in town, and simply playing in the dirt as little boys do. So cute. I'm sure they will have stories for us when we see them next. ;-)
All for now....
Suzie

Frustrated!

Well, PICC line did not go in last night. They just couldn't find an access point, but I do have a question about that and will address it soon. I'm thinking that since since was NPO since 10am yesterday morning and didn't get down to the cath lab until 8pm, she may have been a little dehydrated and they couldn't find a good, puffy vein. I don't know, but the theory sounds good to me and I will ask! We are home for a few hours to do lawn work and for me to do payroll. We will be back with the princess tonight. No fireworks for us, just going to see our little firecracker instead!
Love, Suzie

Finally.....

she was taken down to the cath lab at 8pm. I think they are fitting EVERYONE in today so that they can have a nice long weekend! ;-) Now we continue to wait and pray that they are successful in finding a new access point for her PICC. I will update again probably in a few hours.
Suzie

A new day......new things happening

Last night was actually pretty great despite one of her new IV lines blowing and they had to replace it by finding a line in her scalp. Yes, Lindsay had her first haircut. :-( Not pretty either! Oh well, it won't last long and it's only hair. Ok, looks like the princess will indeed get a G-tube. We haven't had the official "yes" yet but all conversations with various departments of medicine indicates that that is what will be best for her. Even though after a swallow study etc, there is still a small chance of her aspirating again. Doctors don't even want a small chance. They want zero chance and I do have to agree that even though it is another surgery, JR and I tend to agree and then everyone can sleep a little easier at night knowing that that problem has been solved. Sooooooo, at 4pm today, she will be taken down to the cath lab for a new PICC line. Her blood labs have indicated that the infection is being taken care of and because of the high possibility that she will be having the G-tube surgery, she will need that line. It stinks, but this is just one more step in the direction of Kalamazoo!!!! We will probably hear about the G-tube surgery this evening and whether or not they can fit her in in the next couple of days. Darned weekend!!! ;-) Ok, I will update after her PICC line is in and if we hear any other news.
Love, Suzie