PERFECT!!!! I just called to check in and today's plan is to totally wean the nitric, start the sildenifil, rest, and now start the ativan drip. She is one active cookie! The most exciting news is that they totally removed the milrinone! That's right folks. The medicine that has kept her in the hospital since September. IT IS GONE!!!!!! Extubation is now planned for tomorrow morning sometime. They just want to give her the best opportunity to get this done. So, resting it is and letting the sildenifil do its job. I will update again later today.
We are getting there!!!!
Love, Suzie
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Heart Poem
It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you". He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down, and says, "How about if you leave half of your heart here with me and take the other half with you, will that be okay?" The angel smiles and says, "I guess that will work". But the little angel is still a little scared. He asks,"Will I be okay with only half of my heart?" Jesus replies,"Of course you will, I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says "When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart". "Enjoy your time with your family, play and laugh everyday." "And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves."
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In Loving Memory of Taylor Grainger
- Bela
- Braeden (U of M heart brother)
- Brittney (transplant and heart sister at U of M)
- Carlee (my U of M heart sister)
- Carlie
- Ethan M.
- Evie
- Harrison (U of M~ waiting for a heart!)
- Jillian (U of M heart sister)
- Joshua (U of M heart brother)
- Joshua G (transplant)
- Julianne
- Lillianna
- Madi
- Madison "Maddie"
- Mary Clare
- Mia
- Miguel (U of M heart brother)
- Natalie
- Owen
- Sofi (transplant and U of M heart sister)
- Teagan
- Tommy(transplant and U of M heart brother)
- Zachary (my U of M heart brother)
Heart Angels
'Till we meet again in heaven.........
Blog Archive
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2009
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June
(54)
- Getting Lots of Attention Today!
- Infection.....
- The last few days
- Praying from the South Carolina coast!
- Versed.........drug of choice?
- Results
- Uneventful Day.......and Eventful Day
- Wine Tasting Party!
- A good day of resting
- And the day just got better..........
- Happy Father's Day!
- A day of improvements and rest
- Holding Steady and Resting
- Praying from Mexico!
- One Year Photos!!
- Off ECMO!!!!!!!
- Rollercoaster of a day.........seizures
- A picture I thought was appropriate
- Lucky....
- As the song goes...........
- Pictures from the big day!
- Happy Birthday Lindsay!
- No chest tubes out today
- Tissues for this one.......I am warning you!!!!!
- Some pictures to share
- It just keeps getting better!
- THE PRINCESS.......
- Living proof of the power of prayer..........
- Update for Monday
- 9 hours until extubation??
- 2nd sprint......
- First sprint.....
- More weaning......
- Late night visit
- Called on the princess
- Birthday Party is officially cancelled for Sunday....
- One hiccup but we are back on track!
- Pretty in......PINK!!!!!
- The best update ever!!!!
- Update #3
- Update #2
- Update #1
- Still waiting for an update...no news yet.
- Handing her over......
- Everything rides on hope now...
- Still in Mom and Dad's arms...
- It's me.....finally.
- Surgery Time Update
- You thought you needed your tissues for the pictur...
- Get your tissues.......well, at least I needed som...
- Go Tommy Go!!!!!
- Teaser picture from Patti.........
- My Sweet Kids........Together!
- CONGRATULATIONS TO THE WINNERSand a THANK YOU to a...
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June
(54)
Lindsay's Stalker Tracker
27 comments:
It's great to hear how wonderful she is doing. Jessie was very happy to hear that Cole's sister in "Aunt Arbor" has a new heart now. She insists that is where Cole said she was when Cole prayed for her in school. We are so thankful for you!! Can't wait to see her running around the park soon!
you go girl, your marathon is almost over. I'm so happy she continues to do so well.
So Glad to hear everything is going well for little Lindsay! Keep up the good work Lindsay, we are all Praying for you! Sara Dziewicki
I am so happy for all of you and will continue to keep you in my prayers.
Go Lindsay GO!!! What a fighter! She continues to be in our prayers. Sweet, precious girl!
My smiles keep getting bigger and bigger everytime I check your blog. Keep up the great work Lindsay and I'll keep up the praying and praising!!!!
That's fantastic!! Keep fighting baby girl!!! We can't wait to see you! We love you!!
Aunt Suzan, Uncle Ken & Zach
Awesome news! What a Super Birthday presant. Brittney's was her Christmas presant, yours a birthday presant. How wonderful. For you birthday we donated to the Lindsay Dean fund! Even with insurance, we know how the costs add up. It was not much but I hope it helps:)
Brittney Butcher family!
Go Lindsay Go! You are such a strong little girl. Keep up the good work little lady so that you can get home where you belong!!!
Love,
The Geigers
Wow! Isn't it amazing to think that the reason she was being kept there is now gone. What a miracle! I'm so happy for your family. Give Lindsay a kiss for me!
Go Girlie-Girl,Go! Show that spirit I know you have inherited!! Lots of love and prayers. See you next week. Love you, AuntC and UncleRoc
Go Lindsay Girl!! What wonderful news. What a miracle. Prayers to you all. Kandi Butcher
Lindsay is one tough cookie! I can't wait to hear about the extubation and when she begins to get around by herself and free of all the cords and restraints! I know that takes time though!
Go Lindsay Go!
Praying for you!
Karen
cincymomof4
What a little trooper! Still praying here and BELIEVING! (((HUGS)))
Lindsay, you're an absolute Rock Star!! Keep fighting, baby girl. You're gonna have yourself home in no time!
I am loving all of this great news. Sounds like things are going so well. Very happy for all of you!
I'v been checking the blog every day since Elenore D. told me that Lindsay would be getting her new heart. What an emotional journey you all have been on..and what a joyous outcome! Tell "Grandma Linda"that I think of her every day. GOD BLESS YOU ALL.
Dianne Jewett
Congradualates on Lindsay's new heart. I saw an article about her and thought I'd check out your blog. My son, Nick receieved a heart transplant 18 years ago and he has recently turned 20. He is attending college. There can be a great life after transplant. Not all has been easy but I'm glad to have him alive. Best of luck. I will keep check in on Lindsay.
Susan May
www.susanCmay.com
"Nick's New Heart" available now
Wonderful news, keeping my fingers crossed.
Ute
What a great Birthday gift! Lindsey you are doing great! Many thoughts and prayers to you all.
<3 powell's
Chad,Hilary,Baylee,and Maycee
GO LINDSAY GO!!! Keep it up cookie! Praying for a restful night for your mommy and daddy... and you. Hope you enjoyed dinner Suzie and JR! love you guys!
steph, bob, garrett, william and maggie
We're so glad to hear how well Lindsay is doing! She is so strong and just wanting to get out of that bed, dont' you think? She's a wonderful little girl, who's gonna be running circles around those 2 boys before you know it!
love and prayers to you all
Don and Brenda
Sooo happy to hear Lindsay is doing well!! RBC MOPS is praying for you! Thanks to the doctors and nurses!!!!
Keep it rockin princess! You are such an inspiration to us all - we love you, The Davidson's
wow... the boys were sooo excited to hear that all is going good.. HUGs to all :) James, Jared and judi and daddy Jim.. judi Hayward-snell...
wow... the boys were sooo excited to hear that all is going good.. HUGs to all :) James, Jared and judi and daddy Jim.. judi Hayward-snell...
What a beautiful girl you have! We have been praying for her and a complete and speedy recovery. We will continue to fervently pray for precious Lindsay. Thank you for sharing her life with us all!
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