K= Crappy.........Crappy= PCTU......again!

At 12:30 am Friday morning we received a phone call that Lindsay was have dips in her heart rate and arythmas again. They immediately drew a blood gas and it indicated that she was high. So, they started her on a liquid bolas and a dose of lasix after to get her to pee out the K. They also drew another blood gas to do some other tests, and on that one, her K was too low. They immediately stopped what they were doing and then started a K IV. She seemed to be getting better a little after that but then her pressures were dropping slowly and then they made the decision to bring her to the PCTU. She only stayed for about 4 hours and then went back. Of course we checked on her all through the morning in Moderate Care and my phone at around 12 noon, nurse Amy indicated to me that she wasn't behaving again. She had spiked a fever and her heart rate was low again. So, because of the fever, they did a blood and urine culture. Also, checked her K, and once again, she was low. Back to PCTU we go. I called over there to talk to Jen, one of her wonderful primary nurses, and she said that she went over to Moderate Care to see her when she found out that she was headed in her direction and that she did look pale and like she didn't feel well. You are up to date now. They might put her on a continuous lasix drip to try and regulate her urine output. The problem is that she is given her diuretics every 12 hours, and after that is given, she has a huge dump of urine and then her K went pretty low. However, we were able to anticipate that so K was given appropriately. But, about a week or so ago, I mentioned that wouldn't it be easier on her body if we gave her diuretics 4 times a day at a lesser dose rather than every 12 hours at a higher dose? Well, until they decide what to do about the continuous one, guess what her schedule is now?? Well, I can't say that I'm doctor material, but I'm pretty proud and frustrated all at the same time. I wish they would have listened before. That's right, she is on every six hours with a lesser dose. :-) I called last night before nurse Jen left and Lindsay was almost back to her normal self again. WHEW! I called this morning and she just threw up for the nurse but she indicated that everything was fine and call back in just a few minutes and she could talk to me. I haven't asked this question yet, but obviously the rituxin has been put on hold. Dang.
All in all, Lindsay knows when we are planning to head home for a few days and then plans her protest!!! It is snowing like crazy here so hopefully things will be fine for my drive back tomorrow. I am going crazy not holding my baby!!!!
Love to you all.......
Suzie

PS Working at Cole's school yesterday was great. He really enjoyed having me there and the book presentation was great too. He did a wonderful job acting it out while I read to the class. He also loved being able to pass out snack and share his circle cookies (nilla wafers). I am so glad that I could be there for him. Love you buddy!