Wednesday, January 7, 2009

We have had a busy day!

Today we had some very special visitors. Angie and Natalie Hand are a fellow heart family and here visiting family over the holidays. Originally from Mendon, they are here from Alaska! They will leave next week but wanted to make it to see Lindsay first! Can you believe it! We were honored to have them today to visit. Angie and I had a nice lunch in the cafeteria before going to see the princess and then was able to capture some good photos of all of us and the two girls together. To read more about Natalie, I have added her link to Lindsay's rapidly growing list of heart friends. Like I said, I was honored to have them visit today and will cherish the fact that they took time out of their day to see us. Thank you and it was so nice to finally meet you in person!!!!!
OK, now for news on the princess. When we got in the room today to see her, I noticed that her O2 sats were down by at least 10. Normally they are in the high 70's to low 80's and they were in the high 60's to low 70's. They only reached high 70's when she was sleeping. So, of course the doctors ccuaght on earlier in the day and proceeded to do a chest xray. They saw a little fluid on her lung but nothing alarming what so ever. So, looks like Lindsay will be getting another tranfusion (keep donating that blood!!!) tonight and then planning on the rituxin tomorrow. If it's not one thing, it's another! Praying that her shunt isn't the problem yet but if things aren't improved after the blood is given, then they will most likely proceed with an echo to check her shunt status. Otherwise, she is smiling as normal but not quite taking all of her bottle because she gets tired towards the end. We have been tubing only about 20 cc's to complete her feed is all.
Yesterday we also had special visitors. Uncle Robb and Aunt Carole came over for the afternoon and then we all went to lunch. Also, my husband decided to surprise me for the day! They were slow at work so he left to come see his two girls!!! How nice to see veryone for the day. Now, I really can't wait to go home tomorrow and see my boys. Huh, have I mentioned before that Lindsay likes to tell us not to leave? hMMMMMM, have O2 we sense a pattern here? She is a little stinker! Well, back to the hospital for the evening and hopefully to bed earlier than 4am tonight!!!! My schedule is way out of wack!!!!
Love to you all and praying that she gets that oxygen back up to HER normal range.
Suzie Angie trying to play but Lindsay was too sleepy.
Look at these girls and their beautiful blue eyes!!!

Angie, Natalie, Lindsay and I


Katie said...

So happy that you two got to meet and get together!!! Angie is so great...our first heart friends and roomates during Maddie's first surgery. What a wonderful day! The pictures of the girls (and you mama's) are so good! What is it about these heart babies? They're all so CUTE! Have fun at Cole's school tomorrow and hugs to the princess from us :)
Katie & Maddie

The Simmons Family said...

The princess looks fantastic and I am continually amazed at how well she eats from a bottle!!

We'll pray that her sats come back up...hopefully the extra blood will give her a little BOOST!

Angie and Natalie are so sweet to visit. It's nice to have visitors when you're living the "hospital life".


Maggie Geiger said...

How nice for you girls to have so many special visitors! Especially a special Daddy that drives to surprise you!! What a special guy, you ladies are very lucky.
Lindsay's new friend is a cutie also. So nice that they were able to come and visit.
We will pray for Lindsay's stats and for you all to travel safely.

Dan,Maggie,Ben,& Alli Geiger

Elaine said...

What a wonderful surprise to have a visit from Angie and there nothing a heart mom won't do for another heart mom? :) The pictures are great...the two little cuties are just too much. I love the picture where their scars show like little badges of courage...more precious memories for all of you.

Love and hugs, Elaine