Pretty in Pink..........celebrating for a special Angel

Happy Birthday sweet angel.........

Sporting my new Valentine attire. Got to love Old Navy!

The twinkle in her eyes just melts my heart.

Happy Birthday to my heart friends! Love you Owen and Annabelle!

Lindsay had an exciting day yesterday. We participated in the celebration of Angel Annabelle's 1st birthday. A cupcake with pink frosting and dolling up in pink was a must for the occasion. Mom even released pink balloons up to the heavens in the snowstorm as well! We thank God every day that we are a part of their lives and we thank Annabelle for sharing her story with all of us. We are blessed in so many ways. We also celebrated Owen's 1st birthday as well. Owen is a heart brother that is also waiting for a new heart. Please join us in following along in his progress. Things about Lindsay and Owen are very simular so it is interesting to follow along. Happy Birthday to our heart friends!
Lindsay has been doing fabulous this week as well as last week. She had her blood draw on Monday and her CD20 levels were not high enough to do another dose of Rituxin this week. Another blood draw will happen this Monday to determine if next week will be the time for the dose. I was really not surprised that she wasn't ready because if we look back, it took her 3 weeks last time before her levels were back up but unfortunatley last time, she got sick and started her potassium issues, so they decided they would hold off on the dose until she was better. It worked out anyway because she is having alot of company this weekend and she will be feeling well for it. If she were able to get the dose, she would probably not be feeling the greatest. So, praying that she is happy when her visitors arrive. Uncle Rick from CA is coming to town and also Aunt Pam and Uncle John will be here from IA. Not to mention that Daddy will be here tonight or tomorrow along with Cole & Cruz and Grandma & Bill arriving on Saturday. Kirk and Jody will be arriving Saturday afternoon and the rest will be here Saturday night. So, she is sleeping as I type this, so she is resting up for all of the excitement!
Things are the same as far as her care is concerned. Maybe in a month or so, doctors MIGHT consider doing a heart cath to see what her pressures are. If they are low enough, we might have a conversation about doing the hemi-fontan again. Last cath results showed that her pressures were aroung 16 or so. They really need to be in the single digits for the hemi, so we shall see when the time comes. For now, it is just in the back of our heads as a thought. Another would be to change the shunt size if she were to start to develope problems. We do consider ourselves lucky because not all children have possible other options other than a transplant. So, as much as we pray for that new angel heart, we also pray for these other options in case we don't get that heart. We are blessed that we have these options and we are blessed because we have all of you praying for our babydoll. Keep it up! God is listening!
Love, Suzie