Well, I was talked into staying at home with my boys for one more night and I will head back to Ann Arbor in the morning. I called up there a few times this afternoon to check in on the princess and she has been great today. No fevers and only spitting up a couple of her bottles. Crossing our fingers for no fever tonight. It seems that her pattern is that spikes one between 10p and 2a. So, hopefully that won't happen tonight. If she doesn't, then maybe she is over her rough patch as far as her addiction is concerned. We also got a phone call from the cardiologist in charge in Moderate Care for the week and he said that Lindsay will be getting her first dose of Rituximab tomorrow at 11 am. I am leaving early enough to be there by then so that I can ask a few questions before she is either injected or they start the drip. Not sure which one it will be. I will keep you posted. Talk to you all tomorrow~
Monday, November 24, 2008
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So happy you were able to spend some extra time with the boys. I know it must be hard being away from them.
It sounds like things are more and more frustrating for you in Ann Arbor. I know you are being taken care of by the best. With her being so agitated and spiking fevers with no sign of a bacterial infection, has anyone checked her for Mono. Just an idea, I know I am not there to see all they are doing, but our Pediatrician said it could take 6-8 weeks for it to show up. Which is about the time since the boys had it. I have been thinking about you all every night, and this came to me last night. So I thought I would throw it out there. I'm sure the doctors know what they are doing, but this is the nurse/mommy coming out in me. If there is no growth in the cultures its not bacteria but it could still be viral like mono. And if they don't think it is withdrawl symptoms maybe its nothing medically wrong, just new teeth coming in. Sorry I know I am babbling just brainstorming.
You are always in my thoughts and prayers. I know it has been a while since I posted, but we are always thinking of you. Take care and stay strong Lindsay!
Oh, I bet the boys were just thrilled to have one more night with mommy and daddy at home! That's so great. I imagine Cole was grinning from ear to ear to have you two at his program Monday as well! We'll be praying that Lindsay does well with the Rituximab and that she's overcoming her withdrawl issues.
By the way, Hannah loves Cole's picture and has slept with it every night since I gave it to her!
Aimee & family
I just wanted to stop in and say that we are thinking about you down here in P-Cola! We love you Lindsay and you are in our thoughts and prayers. Brae-Brae and Cam say hello too! Happy Thanksgiving to all of you!
Uncle Dan, Braeden, and Camden
How's that precious baby girl doing?
Happy Thanksgiving to you all! We are thinking about you always.
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