Yes, it is 1:15 in the morning and we finally are back in our room at the RMH.....with Cole!!! Our oldest baby is back!! Lindsay has had quite a day. Ok, here we go......In the 5 hours approx. that she was in surgery, she had her shunt removed, patch successfully installed in right atrium, and no luck fixing her tricuspid valve. Every technique seemed to not work but doctors are not overly concerned about it. We will just have to see how she does in these next crutial 24 hours. She might have to have it replaced at some point down the road. She started to dip in her numbers tonight before we left but that was warned to us before she started to do so by the nurses. Typical for these babies to get worse before getting better. Once they figure out her sweet spots for the medicine, she should be fine. A medicine later on can control blood flow for the tricuspid problem as well. Here is what she is on right now: Milrinone, Dopamine, Epinephrine, Vassopressin, and Morphine. We were also warned that she will be a little marshmallow baby tomorrow when we see her. They are expecting her to be very swollen this time because of the increase in blood flow now to her upper extremities. All of this again is overwhelming and very familiar. I do have to say, and Jr and I both agree, that this time is much more frightening than the last. Please pray that her sats get better throughout the night. It is also time again to pray for pee! She had started lasix to relieve some of the pressure off her lungs to see if that would help her sats along a little better. What a little peanut. She has been so strong and she is putting up a good fight. I'm exhausted and will post more in the morning. Remember...pray for pee!
Yeah Little Lindsay! We all knew you would be a fighter! Thank you for keeping us all informed today..you have so many people who love you and your family. Tell Cole I said Hi and I want to know what he bought with his "credit cards" at Disney. Sleep sound Princess Lindsay. We love you.
praying for pee.....Dani
I am praying for her tonight! It was great seeing Lindsay tonight! She is so strong just as her mommy and daddy are. We love you Lindsay!!
Praying its been an uneventful night and that all of you have gotten some sleep. Praising the Lord that surgery went well and asking His hand of healing in these next hours and days. What a tough cookie!! Love to Lindsay from the little ones here!
checking and praying...........peaceful, pee filled day ahead, please!!
I'm so glad she's through surgery! What a long day for you all. Take care and as always you are all in our thought and prayers.
Thank you for the update so that we will know how specifically to pray. Lindsay looks beautiful! I know that she has one pretty little angel keeping her company and watching over her...like only a heart sister can. Keeping you all close and lifting precious Lindsay even higher...
Heart hugs~ Rebecca
We are still praying so hard for Lindsay. What a little beautiful fighter. Thank you for the update!
Suzie, JR and Family, You are all in our Prayers and Thoughts. Lindsay is in the best hands - Gods and the wonderful Dr's and of course her Mommy and Daddy's. We are all Thinking of you. God Bless and try to get some good sleep! Yes, we are Praying for pee too! Joe and Sara Dziewicki
Thinking about you from NICU nursery 3, Helen DeVos Childrens Hospital :) Hang in there kiddo.. you can do this.
Dean Family, Please know that so many people you have never met in person are praying and thinking of you and your little Linday today in spirit. My name is Amy Drilling, I am an Aunt to little Carlee, (I used to boss Jason around in our younger years:) ) I also am a RN at GERBER hospital in Fremont. Our entire night shift is aware of you and we pull up your blog often. Your blog is phenomenal and the strength in your spirit through your words makes me speechless. I am so greatful that Jason and Amanda have had the opportunity to have met you both. God bless you and I hope you feel the love on these most important days... Sincerely, Amy Drilling
We're thinking of you all today. So glad that she's out of surgery and on the road to recovery again. Praying that she responds the way she should and continues to stay strong. I've never prayed for pee before... but if that's what she needs, that's what I'll pray for!
Aww...the picture...she looks like a "big girl" now! I can still feel her snuggled on my chest sleeping from last Wednesday...I am so thankful I got to spend so much time with her...and you of course! I am so obsessed...checked the blog in the middle of the night (easily done at my house...the computer is about 5 steps from our bed...only issue is will the light wake up Bill???) How many of us are doing that, I wonder... and there was the update...thank you so much, Suzie. You have to be so tired and yet you still posted for all of us.
So we are all praying for peeing! And for a good day, good sats, success with the meds, and lots of cuddle time with Cole...I pictured him snuggled between you and Jr. last night at RMH!!
Love and prayers, Elaine
YEAH LINDSAY!! She looks fantastic post op! Hopefully the pain and swelling will be short lived and she'll be home in not time!
Heart hugs~ Rebecca
Good job Princess Lindsay!! Cinderella, Snow White and Belle all are excited for you to come back and meet them with us next time!! We are praying for pee and for you and your mommy and daddy and your family... I miss your brother today! We had so much fun with him. He was awesome and an angel! Don't worry Dani, he will have plenty to tell you about what he bought! We love you guys and are ready to help however we can! Love you guys,
Steph (and Family)
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