Lindsay has had a pretty good day weaning off some of her meds and getting better with her feeds. She has started to get this funky rash however, and the doctors can't seem to figure out what it is. She will have it in one place, half an hour later, it is gone. Then, it reappears....you get the idea. So, as that continues to be a mystery, she is getting the healing done. She has had some leaking in one of her lines in her groin, so they had to take her down to the cath lab today to insert a PICC line instead. This one is in her arm instead of the groin, so that must be more comfortable for her. While they were down there, the doctors were able to get some pressures around her heart needed for the transplant listing. Might as well since they were there and won't have to go to the cath lab....again. Geesh! Poor girl has been sedated for over 2 weeks now! Which, if she has a hard time coming off the sedation, they will start methadone to help her wean. I really don't think she is having trouble, but with Lindsay, you never know! :-) We left tonight with her sleeping soundly so hopefully,Lisa (one of our favorite nurses!!), doesn't have too much trouble with her. Keep the prayers coming. Each and every one is working and God is certainly listening. Love to you all!
PS Has anyone noticed all the hair that she has grown on the top of her head in the last 3 weeks! WHOO HOO! Now she can start wearing the real clip in bows...maybe a ponytail in her near future????