Hi there.....yes, it is a post from Suzie....finally! Well, we got in last night around 2am because Lindsay spiked a fever. Still not sure why but we were very concerned but relieved when the blood tests came back fine and lactate level was fine as well. We were concerned with that level and insisted that they do a blood gas. The last time that she had blood infection, the lactate level was 11 and then up to 19(I think) and it was then that she had to be re-intibated. This time it came back at only 1.2, so that is a HUGE relief. Normal level is to stay under 2.2 The troublesome part of this is that she is already on some powerful antibiotics and infection would be pretty uncommon. So, the mystery continues...........She has also been throwing up a little while after she eats. So, after a few times of that, we recommended that because of her reflux, that they switch her back to the Enfamil AR which she was on prior to all of her last operations. Seems to have worked because she hasn't thrown up since!! WHOO HOO!!
We still haven't spoken to the transplant doctor but we know that she is booked for the antibody reducing drug, rituximab, sometime this week. I have pasted a link so that all of you can read about what it does for pre-transplant patients. Basically, this form of chemo drug will reduce the antibodies in the body to help prevent rejection after the transplant. http://www.circ.ahajournals.org/cgi/content/full/116/11_suppl/I-172
After all of the commotion last night, Lindsay ate just over 90 cc's IN A BOTTLE!!! and then straight to sleep. This was also very re-assuring because she hasn't really slept well at all in the last 48 hours. Just very fidgety and acting like she was uncomfortable. Of course we had all kinds of doctors on her and we were pretty certain that she had bought herself back into the PCTU. Actually, we wouldn't have been shocked of that is what we had to do. I really think she needs that one on one with the nurses but we know that they will send her back if they think that is necessary. So, off to hold and feed her again!!!!!!! Enjoy the new photos........
Love to you!