Monday, June 15, 2009

As the song goes...........

This photo was taken in the evening after putting her on ECMO. She is much pinker than from 8am. The lines from her neck are connected to her jugular and go to the ECMO machine.
Our poor baby.

Everything rides on HOPE now.
Almost (one day shy) one year ago today, Lindsay underwent her first open heart surgery. And one year later, we are back.......again. We got a call around 7am this morning that Lindsay was having trouble and to head over. So, we did and as we were approaching the hospital, the nurse called again to let us know that she was in Pod A (aka ICU). I asked what happened............they think she had a seizure and they are still doing chest compressions. WHAT?!!!! We just fell apart. Our whole world came crashing down in just seconds. Well, it gets worse. She is now on life support, or ECMO. X-rays indicate that she did aspirate as well. Later today they will take her down to do a head CT to see just what happened to her. I am not going to lie and say that she looks ok and everything is fine because it is not. She looks horrible. She is purple and cold. Doctors say that they were on top of the situation. She did actually code shortly after they arrived in Moderate Care. Her heart did stop briefly and she stopped breathing. They are doing an ECHO on her as I type this. So far they can see the her heart is compressed and function is down but that is to be expected when on ECMO. They will try and get an arterial line in a little while. This will be tricky because her access everywhere is just terrible. Oh, please lift her up in your prayers because she needs them terribly. Please pray that ECMO will give her the rest that she needs to heal and pray that her brain is still functioning as it should. Oh, God, we trust you and your decisions but we still can't help but question. Love to you all~
Suzie

132 comments:

Twice Blessed said...

Praying hard

Brooke said...

I will be praying constantly for your little princess!! I will also pray that the Lord puts his hand of strength on you as you travel through this new direction.

aimee gillespie said...

Oh my gosh, Suzie, I'm so sorry. Lots of prayers coming your way.

kayla dean said...

Shocked and sorry to hear the news,
praying for you and Lindsay!!!

jessica jenkins said...

we are thinking of you.......PRAYING!!!!
all the UT&T girls

SassyCassie said...

How horrible! Praying for Lindsay!

Anonymous said...

Come on baby girl! So many people love you and are praying. Aunt Carole and Uncle Robb especially hard for you and yours/XOXOXO

Trisha Visel said...

No No No!!! Everything was good. So upset right now, we will be praying and thinking of all of you constantly today!! Lord PLEASE let the princess be ok!

Anonymous said...

so shocked. Suzie and JR what can we say? Just know that we are all thinking of you and we are sending lots of prayers for your little princess.
Missie & family

Bianca said...

Oh, gosh. I'm so sorry. I'll be praying so hard for Lindsay.

Anonymous said...

i'm praying for you all!

The mom of 4 monkeys! said...

NOOOO! She was doing so well. God, please be with Lindsay and help her to heal....

Anonymous said...

We are praying for you, Princess Lindsay....

Anonymous said...

Many prayers and much love!
~Keri and family

Jill Teats said...

I am praying without end for Lindsay and your family. I am so sorry this has happened....

Jill Teats (friend of the Schomakers)

Crystal said...

We will say a prayer for your angel. Hang in there

Toby & Nora Ward said...

Prayers lifting up for Linsday and your family

Maggie Geiger said...

Praying very hard for all of you right now.

Love,
The Geigers

Danielle @ Living Out Loud said...

Oh my goodness... I am beside myself right now and calling out to the Lord to show his healing power and complete the miracle of her "new heart". Have faith, Suzie... I am praying for you too. So much love to you and the princess... Danielle

Patti VanHuizen said...

NO!! I am in tears right now, praying hard for Lindsay.

Todd Leonard said...

Thoughts and PRAYERS are with Lindsay and for Suzie momma, JR pappa, Cruz and Cole.

Red Neck Diva said...

god bless you lil angel may he hold you close and keep u safe

Anonymous said...

Praying for Lindsay, your family and all the Doctors and nurses.
~Katie (a friend of Patti)

Abby said...

Lindsay and your family are in my prayers. You are a precious angel.

MixedNuts said...

I will be praying for your little princess!!

Anonymous said...

You are always in our Prayers! We never stop! She's a strong little girl and God will see her through this too. Hugs, Sara Dziewicki

Anonymous said...

Shocked
praying for you and Lindsay!!!

DS from NJ

Anonymous said...

I am so sad reading this. I was coming to the site expecting to see just more fun pictures of her amazing recovery. I just don't understand. I'm so sorry, and so upset. Come On Lindsey, pull through this. My prayers are with you. Oh please let her be OK.

Anonymous said...

Love and prayers for your whole family. Never give up on miracles.

God bless you and keep you strong as you tackle this obstacle.

Mackenzie

Shannan said...

Praying very hard for sweet Lindsay, her family and the medical staff.

Katie said...

Oh Suzie! This is such a shock, I too am so sad this has happened. Lindsay is amazing though and will pull through this hurdle. Trust in HIM.

Praying for sweet Lindsay as well as comfort and strength for you and JR. You are loved...

Marcia said...

I am praying very hard for you princess! She is a fighter!

Anonymous said...

our thoughts are with you during this difficult time. we are all pulling for you! come on baby girl, you can do this!!!

wesaw family

Anonymous said...

I was shocked to find this entry this morning. I can't believe this is happening. We will pray for you all.
Cheryl, Craig, Clayton, and Gracie

Lauren said...

I can't believe it. Come on little fighter you can do it. Praying hard!!!

Toby & Nora Ward said...
This comment has been removed by the author.
Toby & Nora Ward said...

Our Heavenly Father,
In times like this it is hard to believe that You are good all the time. But You are! You will never leave us or forsake us.

Right now we pray for Lindsay Dean and that she will have the strength to pull through this mighty challenge she is faced with. We are also praying for Your healing hands of comfort on the Dean family as they are faced with an uncertain wait.

No life of significance is lived without obstacles. Lindsay is living that life, and is significant in many of ours. Please, Lord, guide Lindsay back to health as you have guided her over this past year.

In His name,
Amen

Anonymous said...

Our prayers are with Lindsay and your family. The Finnie Family

ShannonLeideker said...

Oh, I am so sorry. Praying hard for your little princess. Hoping that the ECMO gives her time to heal. I know she will be back to normal soon! Love, Shannon and Madison

The Simmons Family said...

My heart just sank and tears are running down my cheeks. I will be PRAYING for Lindsay to overcome this. Praying that Ecmo will give her little body a rest. Praying that her brain was not damaged during the seizure. Praying for you and JR that you will find strength and comfort right now.

We're always thinking about you!!!

Andrea

Shari said...

On my knees and will be fasting on Lindsay's behalf!

Tiffany Lockette said...

I am in tears. Please keep us posted. I am praying with all of my heart and soul for her.

Kyle Keiser said...

Love and grace..........
Kyle and Sterling

Anonymous said...

So shocked and sad. Praying for another miracle.

Always thinking and praying for all of you

Your sister in Him
Toronto, Ontario Canada

Anonymous said...

We are praying!

Love, The Martin Family

Anonymous said...

Sending love and support to you and your princess in this terribly trying time. Look to those you trust and love for support.

Anonymous said...

We will all be praying. Stay strong.
Love, Steve & Nancy

Misty Warner said...

All my prayers and whole hearted strength are with you and your family. We are all with you Suzie and praying for Lindsay! Please know we are all here with you....

Misty Warner and the fam

Tonya said...

Sending prayers from Utah!

dani said...

We love you all and Lindsay will pull through! She is the strongest little princess we all know! fight princess fight!

love dani, ian and brooke.

Anonymous said...

Remember we serve a God that is bigger than anything we go through here on earth and He can do the impossible. I am on bended knees for you and your family.

Stephanie Winter said...

Come on tough girl!! You can do it! We love you and are praying for you all day!! Fight Lindsay Raye!!!!
love,
steph, bob, garrett, will and maggie

Leslie said...

Oh no, I'm so sorry to hear of your little sweetie's new struggles. I will continue to keep your sweet girl in my prayers.

Lacy's Family said...

I am so sorry and so shocked to hear this news. How can she be doing so great and look so good and take such an unexpected turn? My heart breaks for you and will be thinking about you and praying for you. I will ask my friends and family to keep you in their prayers and also add Lindsay to our church prayer roll.

Amy Meeker said...

Lord Jesus we know that little Lindsay is in your hands. Please heal her heart and make today's set back be a small one.

Praying................
Amy

Robin Myers said...

God bless you. I can only imagine the terrible ordeal you are going through. I will definitely be praying for you and Lindsay.

Cindy Fogg said...

Suzie and JR, our prayers for Lindsay and your family are being lifted constantly throughout this very difficult day. We are praying for the doctors and nurses that are caring for Lindsay. We are praying for Lindsay's strength and healing. Just lifting her name in prayer.

Everyday Mom Designs said...

I don't pray but I am definitely hoping for a miracle for your little girl.. I am thinking of you and your family and hoping that this little princess can pull on through again...

I wish I could hug you in person, but since I can't... {{{HUGS}}}

Diana said...

Suzie & JR.
I was stunned when I got a phone call this morning at work. I'm praying for the little princess to recover quickly and you as well for you need your strength right now to help get her through this. Praying for all of you.

Julie Miles said...

We will certainly be keeping your family, Lindsay, and all the medical teams in our prayers all day today. I know this may seem to come as a big shock to everyone but remember it's not a shock to God.

Anonymous said...

Suzie and JR, this is hopefully just a setback,and she will show us all just how strong she is.God has been watching over her so far, and He won't give up now!! I'll give the boys an extra hug for you guys while they are here today! We'll be praying for you all!
love, Don and Brenda

Terri and Fam said...

Praying for sweet Lindsay and for both of you as this is so hard in all aspects.

Elianah-Sharon said...

We are keeping your Precious in our prayers!

AKFooFighter said...

Dean family - Here are some positive thoughts flying all the way cross country from Alaska. Hang in there.

- The Nevala family: Kristen, Matt, Maggie and Moira

Anonymous said...

Suzie and JR,
The kids and I have been praying extra prayers of healing all morning. Come on Princess!
Sandy Sellers and family

jen hnilo said...

Praying for Lindsay hard! She is a fighter.

Blessings to your family and the doctors,

The Carrolls said...

Praying hard for your sweet princess and for you two also. What a surprise! God please watch out for this family!

Anonymous said...

LORD we lift her up to YOU ! Give Lindsay the strength that she needs to overcome this bump in the road. Give JR & Suzie the strength, patience and faith they need to get thru this.... And give the medical staff all of the wisdom and talent they need to help our beautiful Princess. Lord it's all in YOUR hands - be with them all and let them know they are loved. In His Name.....Amen.

Anonymous said...

My heart has sunk and tears are falling. Chad and I are on the phone, we cant not belive the words we are seeing. We are praying hard for you all in this difficult time,lindsay is strong and has wonderful people by her side. Love the powell's

ann said...

Praying, praying from afar - for peace, comfort, clarity and healing - and the gentlest most able hands of medical staff.

Stephanie said...

Just said a tearful pray for the Princess and her family. Praying hard!

jen said...

sending love and strength to you and lindsay.

Sarah said...

PRAYING so hard for Lindsay, you and JR right now! Praying for the doctors and all involved!!!

Anonymous said...

I'm crying and praying for Lindsay and you and JR.

Michelle Dickson

Anonymous said...

Praying thru the tears!
Love to all..Dianne J.

The Hands said...

Yes, we will be praying all day.
Much love,
Angie

Kimm said...

Praying for all of you! Come on Lindsay you can do it!

Christy said...

We are praying for little Lindsay over at Safe Haven....c'mon, Lindsay!!
Christy

Melissa Gernaat (coffman) said...

My family and I are praying very hard for you princess! You can do it we know you can.
We are also praying for Suzie, JR, Cruz and Cole.

Jennifer said...

I am praying for you. Wow...don't know what to say.
Prayers from Texas,
Jennifer

Anonymous said...

Our constant prayers are with you!

~Stephanie and Braeden(HLHS)

Grandma~rella said...

Oh nooo :**( Fight hard, sweet Princess~You can do this baby girl! Praying without ceasing for complete healing...may God comfort you in His precious, loving arms~right NOW! Soft, gentle (((HUGS))) G'Ma~rella

Anonymous said...

You've been so close in my thoughts all day today.
Praying non-stop!
Love,
Sandy Bilpo

Crysm said...

I heard about your blog from Steve over at A Funky Heart.

I'm so sorry to hear of this scary turn of events. My family will remember Lindsay in our prayers.

As it turns out, our precious babies share a birthday! My son was born 6/11/07. He has several heart defects that required a transplant.
So from one heart family to another, our prayers are with you!!

God Bless.

Crystal

Anonymous said...

Lindsay..
Please stay strong cutie. I am pulling for you and I know my family is too! Ian, Brooke, Kailey and myself will all group hug today and pray for you! Stay strong princess...you will make it through.

Mark Randall & Family

Steve said...

I left a comment but for some reason it didn't post. We found out about this just a little while ago after returning from Zachy's echo. Just wanted to let you know we are praying very hard for Lindsay and for you guys. God hold her in the palm of His hands and will always be by her side, even if you can't. I want to help...can we bring you some food, run an errand, come just to talk, get news out, DO YOUR CHORE for the RMH, what? Please let us know. Besides our prayers, what else can we offer? Call me anytime: 316-641-5598.

Love, Michelle and Steve

Misty Rice said...

PRAYING!!!

Holly Henderson said...

All our love and prayers to your beautiful family. Be hopeful and strong.
Much Love
Henderson Family

Emma Kate said...

Lots of prayers from Heart friends in Louisiana :)

Rachel Unglesby

Anonymous said...

Praying hard!

Loraaf said...

Praying for her and your whole family!

Anonymous said...

Keeping Lindsay in my thoughts and prayers today.

Aimee said...

Praying for you and your family!

Anonymous said...

praying for Linsay!!!

Mari said...

Our prayers of faith and hope and strength for THE Princess and your family. Prayers for the medical staff to be guided on Lindsay's behalf. Amen.

Sara said...

You don't know me but I have been following your blog and as many others I am in tears praying for Lindsay and the whole family. May all the prayers be answered.

Jenni said...

Oh, Suzie...I am just crushed. We will be praying (without ceasing)! She is strong. You are all strong. May God hold you ALL in the palms of his hands.

Heart hugs,
Jenni, Eric, Joshua and Alizabeth Black

CP: Joshuaspage *HLHS*

Anonymous said...

We are PRAYING!!

Anonymous said...

I have been thinking about you and your family all day. It is okay to question things and to be afraid. This is a normal human response. Cling to those you love and trust. There is a circle of people all around the world who have been touched by Lindsay and your entire family. We are all with you in spirit. Love knows no boundaries!!

Stephanie said...

OMG!!!!!! I'm praying!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

God please heal Lindsay and allow her to stay here with us!!!! Please watch over her and all the hands that are treating her right now...please give them the guidance that they need to do what is best for Lindsay right now. Please be with her family and everyone that loves her and may they feel your love and stregth as they need it most right now. Please just save her life! May she get the rest she needs so that she can heal and recover quickly. In your name I pray..Amen!

Rachel Dominguez said...

oh no...I just read your previous birthday party post and left a great comment and then I read this. WHAT!

I am praying with all that I am and have everyone around me doing the same.

melissa said...

Praying for that precious angel!!!
Melissa Langston

Anonymous said...

Lindsay is in my heart and prayers as is your whole family... you and JR are the strongest most loving people I have ever met... Lindsay has proven her strength before and she will prove it again!! much love and hopefull prayers
Lori (Asman) Brown

Christina said...

Oh my. I just wanted you to know even though we do not know each other that we will be praying for your family. I am a heart mom too.

Hugs & Prayers,
Christina
Momma to Jacob (TGA)

Anonymous said...

Lindsay will be in my prayers. Please God be with her. Help her through this.

Anonymous said...

Lindsay is so strong. I pray that God helps her through this. My brother is on the transplant list right now, he has HPLS aslo and is 12. It is horrible that these kids are dealt this hand but they are all such fighters. She will be in my prayers... I am praying hard.

Anonymous said...

My little boys and I are praying for Lindsay.

Megan said...

My heart is breaking for you and your family as i read your last post. We will be praying for little Lindsay!

Amy said...

I was just told about your baby from another heart mom. I will definitely be praying for your beautiful daughter, Lindsay, and your entire family. May God heal this precious little girl who has come so far in her heart journey.
Heart Hugs,
Amy, a fellow heart mommy to Jillian ~ Shone's Complex

The Butcher Family said...

Lindsay is bringing so many to their knees to flood Heaven with prayers for her healing, for your understanding and comfort and for HOPE in a little girl that means so, so much to so, so many! My heart is breaking for you, sweet friend. Praying for restful healing and for all brain function to be normal. God knows the plans He has for your princess...they are not to harm her but for a HOPE and future! We are praying His Word back to him for your baby girl!

I'll be in touch later this evening...

Love you~ Rebecca

Jessica Twigg said...

I am praying for you guys. Ethin and I love you all so very much and we know she can do this. Heavenly Father please hold our princess Lindsay in your hands right now and help her little heart and body work the way it needs to. We give all things to you and pray that you are healing her and holding her. Lord be with Suzie and JR and continue to give them the strength to face each day. Lord we all love Lindsay here and we ask that you hold her and her family in your hands right now in your sons name we pray AMEN.
Anything at all that you need I will do what I can. Love you guys, Jessica, The J Triplets, and Ethin

Natalie♥ said...

Praying for your sweet baby girl!

Anonymous said...

Thoughts and prayers are with you and sweet Lindsay!

Prinny said...

Prayers coming your way! Hang in there little princess.
April known as Prinny (friend of krissy and mike)

mina said...

Will be praying for Lindsay!

Kaidence's Mommy said...

I have been following your blog for a while. My daughter Kaidence had her heart transplant at 10 months old. My thoughts, worries and prayers are with you. She is such a darling little girl. May she be watched over and blessed this day.

Melissa said...

Pray for you and sweet Lindsay!!

Anonymous said...

OMG!! your family never leaves my thoughts. we will be sending positive energy your way! pull through baby girl! You can do this!!!!!

the deubner family

Anonymous said...

Praying for Lindsay and the family...I am so sorry to hear this, but she can pull through. She's been through so much already!
...Kimberly

Anonymous said...

Im so sorry to read this prayers are being said. May God give all of you strength in this terribly scary time.
Suzy
Mom to Tanner, VSD's, PDA, PFO tricuspid valve leak/regurg

Anonymous said...

Praying, just praying.

Anonymous said...

I am so sorry! She was looking so well. We will keep praying for you. I will call our prayer groups and have extras going for you!

God Bless

Stephanie

Elaine said...

Praying, praying, praying...

Love, Elaine and Bill

vivfla1 said...

Oh, my heart just aches for you and your little princess. May the Lord hear our prayers and heal precious Lyndsay. I am saying a prayer for you right now.

Anonymous said...

I'm getting scared not seeing any updates. I just pray they were able to give you some good news today with all the bad news. I continue to pray for Sweet Lindsay to pull through. Oh please pull through dear sweet baby girl!! We want that heart to work for you!!!!

rudysbeat said...

We are praying for your precious Lindsay and you during this frightening time.

Rolf and Trish
parents to Rudy (HLHS)
Santa Barbara, CA

Christina said...

I am going to put a prayer post up on my blog for Lindsey. It will post tomorrow morning. God Bless!

Anonymous said...

Hard to type thru the tears....Praying (really hard) that this is just another bump in the road!
Gramma TJC

Anonymous said...

Stay strong peanut!! You can do this!! Lets get you home to your mommy and daddy and those big brothers who adore you to peices!! As a NICU nurse, I know this story all too well... but also know the story of MILLIONS of MIRACLES that happen all the time! Stay strong sweetheart!
Emily, Helen DeVos Childrens Hospital NICU Nurse...

Anonymous said...

MY CO-WORKER KEEPS ME UPDATED EVERY CHANCE SH CAN GET GOOD-LUCK AND ALL THE PRAYERS IN THE WORLD FOR YOU AND YOUR FAMILY LYNDSAY.

Chris said...

I read your blog a couple of days ago and saw her bday party pictures and smiled, she looked so good , didn't have time to leave a happy bday comment so today I decided to take a minute to comment. I am in tears with you right now and praying that everything will be ok ! I am so sorry , she looks like a little fighter though .
Thinking and praying for you and your beautiful baby .

Mimi said...

Oh Suzie- I was just headed off to bed and wanted to check in on our little Lindsay. I am so sorry she is in ECMO! My heart hurts and I wish I lived closer so I could be more useful. This stinks. Lindsay was doing so great- hopefully she will be back on the floor in no time!! Praying for you all!

Come on Lindsay- You can do this girl! Rest up and get off of the yucky ECMO so we can see your sweet smiling face!!