Tonight's goal is to start weaning her oxygen. She is currently set at 50% and doing awesome. Her gases say that her PO2 is actually 160, so it is time. She is definitely breathing over it! The nitric is weaned down to 5 tonight already and her pulmonary pressures have stayed the same but are still a little higher than what they would like. So, because of that, they said that they will start her on some feeds to prime her belly and that way when the nitric is shut off, they will probably start her on sildenifil (Viagra) to lower her pulmonary pressures. It was explained that the heart that she has now is used to a little lower pressures so they would like Lindsay's to be the same if possible. Her higher pressures were why she couldn't handle the Hemi-Fontan. But now that she has a nice WHOLE heart, this can be adjusted pretty easily. Stinker!!!
We will be going up again for a visit soon, but needed a nap to get rid of headaches before hand. Keep praying........especially since we now know for sure that they work!!!
PS Trying to figure out how to jazz up those restraints! ha ha Seriously people, she has been flopping like a fish on that bed. And that is why they made more drugs.......nighty night.