Thursday, June 18, 2009

Holding Steady and Resting

Lindsay's head CT came back looking about the same as Tuesday's. This is a good thing but they all have decided to do an MRI as well. So that might be either tomorrow or Saturday for that to try and get the best pictures possible. She has been weened from her Adivan, her morphine down to 20, milrinone is at .7 but will ween as soon as she gets her echo tomorrow,and her Epi is only at .01. Must be she still needs that little dose while she rests. Sprints might take place tomorrow, but we are not holding our breaths for that one. She will need time and frankly, it is just a complete miracle that she has come this far already after Monday's events. She has started to wake up a bit which is a HUGE milestone when referring to her brain function. She has moved her arms, legs, toes, fingers, and shoulders. She has blinked her eyes but has not opened them yet. They aren't too surprised with that because with her never have been on phenobarb before, this can make you very sleepy. We are breathing a little easier now but still have a ways to go and especially with her medication regimen.
We were able to get a nice break this evening and go out for dinner with Steve and Michelle Hagerott. We all needed a break and good conversation. It is Steve's birthday today and we were honored to have spent that with them. Thanks guys!
Continue to keep Lindsay in your prayers. Zachary is healing as expected and Tommy is back on the floor, but is still dealing with stomach issues. Please pray that this gets resolved very soon. We love you all!
Suzie

34 comments:

Stephanie said...

She's taking her time and that's what is best right now...she knows what she needs! As long as she gets well then she can take all the time she needs :)

Saying a prayer that the MRI comes back okay and the sprints go well. Hang in there guys...you're doing an awesome job!!!!

megan said...

Thanks for the update! I'm glad that Lindsay is doinmg better!! Praying for your family and little miss Lindsay!

Stephanie Winter said...

God gives us life! FEAR NOT!! We love you guys and continue to pray for you everyday... now the whole VBS is praying, too! love,
steph and crew

Anonymous said...

How did Steph beat me to the comments!!! Anyhow, prayers are constantly flowing for Lindsay and you and JR. I just wish I could wrap my arms around you both...what wonderful people (parents, too) you are!! The strength God provides through prayer is beyond description.

love and prayers from Ron & Sue

Tiffany Lockette said...

Thanks for the post. Man my heart is just simply aching tonight for all of these sick babies. There are several blogs I am following and I feel I am invested in now. These sweet babies are just so precious and it is so very, very sad what they are going through but each and every one of them are fighters just like little Lindsay. My heart breaks because I wish I could do something for you guys, for Lindsay, for all the sick babies and their families. The best I can do is pray, pray, pray. I will do that each day and I hope with all of my heart that Lindsay continues to get better. Stay strong and just know you have many unknown friends out here.

Kyle Keiser said...

Patience is such a virtue, and only learned through such trying times. Glad you got a break.

"Start by doing what's necessary, then what's possible and suddenly... you are doing the impossible."

This is the path Lindsay seems to take.

Following her path with patience and prayer........
xox
Kyle

Anonymous said...

We sure are praying for Lindsay here!! She will let us know when she feels strong enough to come around,,she's taking her time and resting. We love and think of you constantly.
love Don and Brenda

Anonymous said...

Thank you Suzie for the update. I have been on so many times today and always afraid to look at the post. She is proving to all what a fighter she is, and how powerful praying is. I am so grateful that you have had some good news, and I hope that you and JR get some much needed rest. She is a lucky little girl and I cannot wait til she can meet Mamie as they are the same age and have the same chipmunk cheeks! What fun they will have. You are in my prayers constantly, hang in there. Chris Willson, alias Mimi!

Anonymous said...

Appreciate the update--I have had Lindsay on the brain for the past several days. Worried about her, yet I have seen first hand what she is made of! Still thinking and praying for all of you.

Take care--
Lisa--pod A

Anonymous said...

Thinking of you guys!

Love, The Martin Family

Tara said...

I have been checking for updates everyday and am so glad that things are looking up. She is an amazing and beautiful little girl! My thoughts and prayers are with yall.

Anonymous said...

Lindsay-take all the time that you need..we'll wait & pray for as long as it takes for your strength to return. Love to all!
The Jewett Family

MJ & David said...

The Princess is doing it on her time. We have faith that the Lord will bring her though this too.
Hang in there!

Maggie Geiger said...

So glad that you guys were able to get some time for yourselves. You need that time to regroup and catch your breath! Sounds like the Little Miss is taking things on her own time, just as she should! We are continuing to pray for all of you!

All our love,
The Geigers

Todd Leonard said...

Rest is needed by all... Glad everything is looking good! Keep our fingers crossed for a good MRI! Thoughts and PRAYERS are with you all!
Todd Leonard and Family

Christina said...

Just stopped by before bedtime to let you & your family know we are still praying for Lindsay.

Love & Hugs, christina

Elaine said...

All good news: breathtaking!!

I am so glad you went out with Michelle and Steve...they are such special people and you are all so lucky to have each other as you go through this with your precious babies. Isn't Zachy a beautiful baby? A prince, one could say!!!

Love and prayers, Elaine

Jen Pease-Shaw said...

I'm so happy to hear that little Lindsay is doing better. We will continue to pray that all goes well. She is a true fighter!!!!

Heart Hugs from Samantha
cp:Samanthapease

Danielle @ Living Out Loud said...

Slow and steady... that's good news! Glad you got to take a break for dinner with Steve & Michelle... I'm sure you ALL needed a break :) Continued prayers for another "slow and steady" day tomorrow!

The Simmons Family said...

Great news all around!!! I'd say let her rest up, she's been through ALOT in the last few weeks. I still can't wait to see that smiling face.

Andrea

Stephanie said...

Keep it up girlie!! We're praying for you!

Anonymous said...

Keep resting little one. We are all thinking about you and miss you guys.

Mark Randall & Family

Anonymous said...

I hope the Dr's are checking for blood clots, as it sounds as if this is the trouble after a heart transplant on a fragile child.
Prayers of healing

Holly said...

So relieved to hear the CT is good. I hope the MRI is good also!!

aimee gillespie said...

Holding steady is good. We all know that Lindsay likes to do things in her own time anyway! Keep resting and healing sweetheart, we'll keep praying.

Aimee & Family

Anonymous said...

I am happy that there are little steps towards recovery. What a horrible ordeal. We are thinking of you constantly and praying for good test results.
Love
Ute

Anonymous said...

So glad that things are looking up...still praying for sweet Lindsay and your family!
-Heather

laura b said...

Just a ray of hope, even if changes have occured due to her complications, young children often have amazing recovery due to having so much of the brain tissue being availble to take over needed function. She seems to have amazing strength and recuprative qualities as a rule from everything she has already experienced. Keep up the hope. Still praying for all the children and their families. Laura from St. Ambrose

Anonymous said...

Praying for good result from the MRI today. Praying that Lindsey will be showing you her beautiful eyes and smile very soon!!!!!

Rachel Dominguez said...

PRAYING PRAYING PRAYING!

Anonymous said...

Suzie,
We continue to think about Lindsay and hope for positive improvements. Wishing the best for all of you.
Love,
Jill, Travis & Reagan

Diana said...

Checking in on Lindsay, glad to here she's resting. Praying for positive results. Jen, Jeff and kids leave tomorrow for the Disney trip you booked for them. Kids very excited. Your strength is incredible.

Melinda said...

I just checked in and see I missed ALL of the good news! I had to go back and catch up! Congratulations on Lindsay's heart, and thoughts and prayers for continued improvements for the Princess as she recovers from Monday's episode! Hugs!

Brittney Butcher said...

Happy Fathers Day JR. I hopt today and the days to come bring good news. You definately deserve good things!
The Butchers