The last few days have been pretty low key. Just trying to keep her comfortable and trying to get her to tolerate feeds when we get to the higher rate per hour. X-ray indicates that she has some barium (sp) in there somewhere from the swallow study and really don't want that to get stuck and then bind her up. So, basically, trying to get her pooping so that she will pass that. Then maybe her belly problems will be over. Let's hope so because that is one step closer to blowing this pop-stand!!!!!!
Labs indicated this morning that she had an elevated white blood cell count so they drew blood cultures to see if anything is brewing. She does not have a fever, but has been sleeping more than normal. Let's just pray that she is just healing and not trying to fight off anything. If she is, they are on top of it and then she starts IV antibiotics. If anything, I'm thinking a UTI. hmmmm. Let's hope that I am wrong! Otherwise, all is well and she is gaining every day.
On a sad note, a heart baby passed away here yesterday. Ethin Twigg was born in January with HLHS. He has had a tough road and unfortunately coded yesterday and they could not resuscitate him. Please pray for his mom, Jessica, and the whole Twigg family. We are just heartbroken.
I will update more as we get results. The praying continues......