Saturday, June 6, 2009

Late night visit

As I mentioned before, I couldn't sleep last night, so at midnight, I went over to see Lindsay. I just can't begin to tell you how great she looks! When I was there, they had weaned the vent down to the rate of 22 and she is on 50% oxygen. I called this morning and during rounds, the consensus was that they were going to leave her there for most of the day to make sure that her pressures are doing fine and worry about the major "weening" tomorrow. Fine with me!! However, the princess is officially restrained! Yes, folks, she is trying to roll right out of her bed! So, they now have hand restraints attached so the nurses can feel a little more comfortable with leaving the bedside at least for a second without having to worry that, sedated and all, Lindsay won't either fall off the bed or pull out her breathing tube!!! YIKES!
I just wanted to thank everyone for their very special comments that you have been leaving for us. I have noticed a small trend lately that is just starting to actually sink into my head that it is soon a reality.................getting out of here and taking her home!!! WOW! By the end of the month, WE ARE GOING HOME!!!!!! sniff sniff
Heart Blessings!
Suzie

43 comments:

Maggie Geiger said...

Great news! I love the great news. Just when I think I can actually get something done around my house, I get an itch to check the blog and surprise there is a new post! So much for getting ANYTHING done today!
Keep up the great work Lindsay! The prayers are flowing so you keep up your end of the bargain little lady!!!

All our love,
The Geigers

The mom of 4 monkeys! said...

Get some rest while you can Lindsay because very soon you will need your energy to chase those big brothers of yours!!!
Wonderful news!!!!

Amanda-The Family News! said...

I am glad Lindsay is doing SO great!!!!!
I hope you get some rest...I don't think I could sleep either...
Amanda

Anonymous said...

Glad to hear your princess is doing great!! Thoughts of going home, how WONDERFUL!

Love, The Martin Family

Steve said...

Home sweet home! Thank you for reminding me that it's such a special place to be! Sometimes I feel like a prisoner to the clutter and chaos that is our home...

And that is TOO funny about the restraints, but doesn't it just speak to your little girl's strength and vitality??? I hope that within the next couple of days they'll be able to take those off and put her in a REAL crib... on the floor! When they do, please ask them to send the restraints down to me, as I have good use for them here.

Lots of love,

Michelle

The Butchers said...

It is GREAT that she is doing so well. We know how the "can't sleep" can be:) It is so wonderful that Lindsay finally received her gift of new life! No you will be entering a whole new world! Taking Brittney home was one of the most scariest times of my life. I was so nervous. But, when we got him, nothing happened. I realized that we could do it and Brittney was a normal kid still. Now she is back to school and doing her sports. She is back to "normal". The only reminder is her 23 pills she takes a day. It will be so great when you can take Lindsay home and return to a "normal" routine away from Mott! I can't wait to read about her firsts outside of Mott.
We love you guys and hope to stay in contact! Stay strong and believe!
Brett, Jennifer, Brittney, and Micheal Butcher

Anonymous said...

Your long journey is now reaping some real rewards. Uncle Robb and I couldn't be happier and so very grateful. Lots of emotion. Love you all lots. That feisty spirit is in Lindsay. Thank God for lots and lots of things! Love you/AuntC

Bianca said...

I have goosebumps. Wow! The prayers are still working. She such a strong girl, literally. That's amazing that she wants to roll off of the bed already. It's crazy in a really great way!!

Everyday Mom Designs said...

That is wonderful! I, too, have goosebumps.. I am so happy for all of you. This little princess has made it. She is definitely a fighter. I can't believe she's trying to roll away! :)

Patti VanHuizen said...

AWESOME!!!

jen hnilo said...

I am so glad to hear Lindsay is doing so well. What a journey you have been on, and what journey to come with three wonderful children! What a blessing!

jen hnilo said...

I am so glad to hear Lindsay is doing so well. What a journey you have been on, and what journey to come with three wonderful children! What a blessing!

Stephanie said...

That's our fighter!!!! :)

So ready for the second best day of all...going home. Of course the first was yesterday when her angel heart came :)

Love you guys!

The Butcher Family said...

So...do the hand restraints at least have rhinestones on them? She is so tough...watch out big brothers!!! Little sissy may be wrestling you boys before too long at HOME!!!!
Praying for a restful, healing day!

Love you~ Rebecca

jeandavee said...

We are so very happy for you!!!
- The Eldreds

The Simmons Family said...

Please continue with the GREAT NEWS!!! We're thinking of you all. AND YES.. can't wait to see you go home!! :)

Andrea

Lacey said...

I am so happy for you. I remember thinking I would never take my baby home. And that day was such a high that I'll never forget that. And our stay wasn't even close to yours. 117 days to be exact.

The Palmers said...

I've been following your blog and wishing the best for your family. It is bringing back memories of 4 months ago when my husband had his heart transplant. He has(had) and CHD also. You know, they don't have the defect anymore!!! It still hits us regularly that there is someone else's heart beating strongly inside him. How amazing is that!!! I'm so glad Lindsay is doing so well. Soon she'll be home at this rate!

Angie said...

Well hello Dean family...I cant express how happy we are for you..We knew that The Lil Princess was a fighter..and now just wait she gonna be a handful and her brothers are gonna have to run and hide...Prayers contine and love is sent your way...hugs and kisses.
The Peebles Crew. ^i^

Anonymous said...

This is the best news ever. I am so looking forward to meeting the beautiful Princess.
Thankfully,
Chris Babiasz

Danielle @ Living Out Loud said...

HOME... what sweet words to hear YOU say! With her feisty will to overcome and strong spirit, it won't be too long before she is making messes, playing outside, and wrestling with her brothers... AT HOME! What sweet pictures those will be :)

So glad to hear that she is still making great progess... we continue to pray for uneventful days and that her little body will continue to recover... perfectly!

Maybe by her actual birthday, she'll be well enough to taste a bit of frosting?!?!

Lots of love... Danielle

♥ Michele ♥ said...

Wow!!! I just checked in on your blog and what wonderful, awesome news!!! She is so adorable. We will pray for her continued recovery!

Misty Rice said...

Awe what a joy, emotional time, blessing, precious give and season this is for your family.

Praying she continues to stay on this exciting and uplifting road. Will also pray for the family that was able to provide the heart for their loss.

She is beautiful. God Bless.

Mimi said...

Yes!!!! It is so true! You have your ticket out of there, and before you know it you will onlly be going back ONCE a month!!

I feel so much joy for you guys- I can barely CONTAIN myself!!

The only thing I wish I would have done before we left the hospital is get contact info for all of our favorite nurses. They really were my frieds during those months and I miss them. I am sure I could track them down when we go to clinic, but it so chaotic and I haven't wanted to parade Mia until her tube is gone...that doesn't seem to be happening for us ;-)

Again, I am so so so happy!!

I gathered a bunch of advice from transplant mommies when we were on the floor- let me know if you want those emails. They were really helpful for me!

Faith M. said...

That's wonderful news! I'm sure it's wonderful to see her pink and feisty! Thanks for sharing your story. I'm praying for your beautiful girl.

Heart hugs,
Faith Mahoney (Maggie Jane 2 yrs., HRHS, transposition of greater arteries, interrupted aortic arch).

Anonymous said...

Hi you guys,,I've tried to lv 3 messages, but it doesn't work,,try again. I'm soo happy for all of you. I get so emotional everytime I think about Lindsays journey. On surgery evening it was unreal, we all were cking facebook, and here to find out just "anything". All of your supporters were praying like crazy, and I really think it helped. Can't wait to hear from you.
love you guys, Don and Brenda

Anonymous said...

This is wonderful news for you and your family, Suzie. All of my love, thoughts, and prayers are with you and your family as Lindsay makes the transition from hospital to home!!

Brandi Howell (Bolf)

Stephanie Winter said...

Hope you are having a restful day... I'm with Rebecca, I think the restraints should be with pink ribbon or bows attached!
Maybe she will be home for the fourth of july again!! Can't wait! Hope you know that all of us stalkers will be here when you get home to help ANY way you might need!!!
love you!
steph

Stephanie Winter said...

me again... you might want to change the "about me" part on the blog... since she is no longer waiting!!!!! YEAH!!

Anonymous said...

Keeping up to date with you...makes me want to doodle her name & put litttle hearts all around it! It is almost a giddy feeling he heart came right at the time it did and wow...she is healing as fast as can be.
Love to you from Owen's Gramma Vicki

Amanda Groulx said...

Just thinking of you guys getting to take her home gives me chill bumps!! I'm so happy for you. I hope that she continues to get stronger everyday so you can get out of there. We'll be home in August so hopefully she'll be home and we can come see her--through the window of course-- she'll probably still be on restriction.

Take care!
Love,
Amanda

Courtney said...

What a beautiful baby girl! I so glad everything is going well. May God continue to bless your family. We have some friends in Michigan right now with their baby boy Mason who was born with HLHS.
Love In Christ
Courtney Mayfield

Rebecca said...

Suzie, I am just so happy for you guys. Words can't say enough. I constantly think of you and your family. Lindsay is proof of God's work and all the prayers that have been said for you guys. We love you all.

Anonymous said...

Hi I'am glad Lindsay is doing so good. I went I saw the boys and Sam play ball today. It was so cute that Cole told another boy that his sister has whole heart. Our thoughts and prayers are with all of you. Lots of love Aunt Retta and Wade

The Hands said...

This is what I prayed for! Leah called me on Thursday and told me that Lindsay was getting her heart...and now I find out that it was the "perfect heart" that I was praying for! Thank you Lord! This is the first time that I've been able to get online this week so I'm so excited to see Lidsay's wonderful progress and beautiful "Pink" pictures! It's debatable whether you could get her any cuter than the first photo shoot of her one year pictures, but she may be due for a re-shoot! :-) I'll be continuing to pray for your hearts that have been on this roller-coaster ride for so long! Many blessings to you. Isn't God Good!!!!
Angie

Lindsay said...

I found your Blog through Kelly's Corner and I clicked on it because of Lindsay's name.I am a Lindsay and it is rare to find other Lindsay's.. I am praying for you and your family..

God Bless,
Lindsay

Anonymous said...

The day is coming closer when the Princess will be chasing her brothers and nothing will stop her now! Her brothers will teach her how to tackle (even though she is a princess!) and wrestle and do some crude things unfortunately - ha ha - it is just so cute to watch! It is amazing how dainty and 100% princess my little girl is but when she is with her three brothers -- LOOK OUT! Lindsay will soon be the same way! What a blessed day that will be! It is coming soon and I couldn't be happier for your family! What a strong princess! You are so blessed!

Karen
cincymomof4
Cincinnati, Ohio

Anonymous said...

I am so happy to hear that your little angel is doing so well. I just read your story last night and immediately put her in my prayers. She is so beautiful and sounds like a little fighter too! I will continue to pray for all of you. Can't wait to hear that she is going home!

Chad, Jenn, & Blake Thomas

Stephanie said...

Yay!! I'm soo happy that she's doing good!!! Keep it up Lindsay!!

Jeannie(HAPPY HEART) said...

Praise the Lord for Lindsay's miracle. God is sooooo good. My family walked the transplant journey two years ago. I recieved the gift of life on Feb. 3, 2007 and I am doing great! It is so amazing to watch another miracle. Praying for you tonight. The Lord will walk with you each step of the journey.

Praise Him,
Jeannie
carepage Jeanniesjourney

GIFT said...

What WONDERFUL news!! We have all of you in our prayers each night and are so excited that Lindsay will get to go home very soon!! We will continue to pray for a great recovery and can't wait to come visit when she is ready for company! Hugs!! JJ

Tiffany Lockette said...

I am so deeply happy for you guys!! Lindsay is so beautiful and your family and your story is beautiful. I pray that Lindsay keeps up the good work. Go Lindsay, Go...We are all pulling for you sweet kiddo.

Anonymous said...

Hey Susie & JR - you think you had stalkers before - well it has reached a new level...most of us can't help but check the blog every hour. We all are SO EXCITED - we just can't help ourselves. Prayer is a powerful tool and a great witness to all - God is good (or as Garrett would say GREAT!!)

love, Sue & Ron