Monday, June 15, 2009

Lucky....

This is the word that comes to mind after all of the events that transpired today. Lucky. First, I would like to clarify what happened and tell you the results of the tests. There is a reason that my husband was with me today. In time of great urgency along with the emotions that go along with, we heard two different things and we were able to clarify once the dust settled a bit. What I am referring to is her heart. It DID stop this morning. However, this was not the issue, it was because of other issues that this happened. The issue was that she aspirated severely. This then lead to her not getting enough oxygen to her brain so she started seizing. Because of the lack of oxygen to her brain, this means that it is also not getting to her heart and that is why her heart stopped. We are thanking the Lord above that doctors and nurses were already at her bedside when this transpired and were able to start compressions immediately. Once they were able to move her to Pod A, they did get a heart beat but had to continue chest compressions because her blood pressure was not adequate and they still didn't have her lines in to medicate to control it. Chest x-ray from earlier was horrible. ECMO will give her a chance to rest for a couple of days and get rid of some of the fluid. One of the other major concerns is her kidneys. She is peeing like crazy so thanking God again that these seem to be functioning properly. Now to the brain. This is of course the biggest concern next to her heart, which is fine by the way!!!!!! Since she is on ECMO which is a lot of machinery to maneuver, they went ahead and just conducted a bedside ultrasound to see if they could see anything alarming. Drum roll please..........nothing alarming what so ever! AMEN!!!!! Now, this still doesn't mean that she doesn't have any problems, it just means that there isn't a reason to take her down to get the head CT right away. We will just have to reconsider if she shows signs of brain related problems. Lindsay does have much better color when we were able to see her again around 2pm. Her head, hands, and feet were definitely pinker. Still blue, but better. I will post a picture later this evening of the whole ECMO get up.
On a lighter note, we just want to say thank you to all that have sent prayers up for our daughter. The amount of people that have posted just brings us to tears. Off to see the princess. Love to you all!
Suzie

117 comments:

Olivia (CA) said...

Oh, praise the Lord! I have been praying so hard for you all today and am thrilled that progress is being made. We will continue to pray for complete healing and that Jesus will continue to hold your hands through it all.

The Simmons Family said...

Oh horray for good news!! Well, not all of it's good, but we'll take a little bit. We will continue to PRAY for You, JR and the PRINCESS! :)

Jen Lindsay said...

I've been so worried about her all day, checking the blog every five minutes. Thank you for the update. Your strength amazes me.

Anonymous said...

Thank you for posting the encouraging update. My thoughts have been with your entire family all day. It is hard to think and hear clearly when your emotions are so high. Take a step back and clear your head as you need to.
Enjoy your visit with your princess as we all continue to send positive and loving thoughts your way.

Maggie Geiger said...

Thank you Suzie for the update! We will continue to pray for all of you. Sending lots of love and hugs your way.

Love,
The Geigers

Anonymous said...

Praise to all the prayers, and to our Father in Heaven for better news. Oh my!!! My stomach is still in knots, but will keep praying she will improve with each passing moment. Praying for your continued comfort of peace at this trying time. Go Lindsay!!!! You are amazing and so many want to have you wake up and give your parent's a big happy smile!!!!!!

Angie said...

I was trying to fiqure out why they would do chest compressions if her heart didn't stop.....thanks for the update and for clarifying that! I have been thinking about you all day and glad to hear things are going OK. Miracles happen everyday....right?!:)

Misty Warner and the fam said...

It is the best news we could hear even though she is no where near out of the clear. But still, it is great news. I am so happy for you guys for that. Thanks for updating, myself and so many others have been a mess with and FOR you guys today. She is a very special girl and we all feel apart of her life. Good luck Suzie and please keep us posted. Prayers and thoughts through the night for Lindsay!

Misty Warner and the fam

Anonymous said...

Thank goodness! Now I can breathe again! Suz--you and JR are so together and capable, you are a model to all of us, no matter how long we've been married, as to how a loving couple should, and can, handle any crisis.

All of our love, as always,
Aunt Debbie and Uncle Rick

dani said...

Thank god! i have done nothing but cry all day! so many people love you and lindsay and we are always here for you. we love you from across the country and always!

love dani and family.

jessica jenkins said...

breathing easier!

Melissa Gernaat (coffman) said...

Thank you for the update Suzie and we will continue to pray for lindsay and the entire family.

Laurie Walton said...

Suzie and JR,

Tears of joy!!! Still praying for precious Lindsay and you too. You're not walking this path alone; the Lord is right there with you all.

Hold onto Him tightly!

You are just fabulous at keeping us updated in the middle of things.

Laurie Walton (Lynette's sister)

Anonymous said...

Continued prayers for your little girl. And so many prayers for strength for her parents and wisdom for her doctors.
The Cross family
Mobile, AL

Anonymous said...

Thank you for the update. We will continue praying for Lindsay.

Sarah Decker

Anonymous said...

Continued prayers and thoughts are with you and your family.

You couldn't be in a better hospital--having been going there for the last 33 years with my daughter!!

Kaidence's Mommy said...

I am so glad that things seem to be looking up for you again. Hopefully she can get the rest that she needs and that things will continue to improve. We will keep all of you in our prayers.

Todd Leonard said...

I thank you for taking time away to keep us informed! We hope everything continues to improve! Prayers are with you every minute! We love you guys.. Let us know if we can help in any way! Todd Leonard and Family

The Hands said...

Thanks for keeping us updated. We will still continue with the prayers. Don't you just wish you could see the heavenly army that has been surrounding Princess Lindsay through this whole thing!
Angie

Anonymous said...

Well the news is better...We are all praying for her. God is The Great Physician and with His help Lindsay will be healed. I am praying hard for you guys.
Suzy
Tanners mom, VSD's, PDA, PFO, tricuspid valve leak/regurg

Anonymous said...

hoping she continues to improve every minute. J.R. and Suzi you are amazing people, stay strong for your little princess..

Shelby said...

i have been "stalking" Lindeay for a while now and just felt like i should let you know that we are praying for her and for your family.

Prayers from Indiana

The Hawkins Family

Mark said...

You and JR amaze me as parents. You guys are so strong through these times. I know that I would be a wreck and would not be able to post to a blog, but I am glad you have the strength for it. I have been checking on your site all day long to get some good news. Stay strong Suzie. You are a role model for all of us. Thank God Lindsay pulled through another horrible time, even though she is not in the clear yet. She is an incredibly strong little girl and she (and You) has touched so many peoples lives. We will continue to send our thoughts and prayers for her and your family.

Anonymous said...

I will continue to keep Lindsay in my prayers as always!!

cketron said...

Never posted before, but my bff from childhood, Maggie Newland Geiger, has generated prayers from all the way in Savannah. I have been checking your blog ALL DAY, on the edge of my seat, hoping the little princess does well. The news is better than I even hoped. I was googling ECMO, chest compressions, etc in between checking your blog and Maggie's facebook page. One of these days I want to see your doll baby and precious boys in person. God Bless all of you.
Chrissy Ketron

Anonymous said...

Wonderful news so far! You are still in our thoughts and prayers. Hopefully the night will bring additional relief. Every single moment is important.

Mackenzie

Tara said...

what great news! yall are in my thoughts and prayers...

Lauren said...

Praying for your beautiful and amazingly strong little girl, Lindsay. Many **Heart Hugs** sent your way!!!

With LOTS of Hope, Love, and Faith,
Lauren (21yr. old w/Tricuspid Atresia aka HRHS)

Jill said...

I am another one who has been praying for your family. We have a little girl in our ward, she's 7 1/2, and she was born with the same condition, and she is doing great now.

Anonymous said...

Constant prayers are flowing for Lindsay and you... love, Ron & Sue

Amanda-The Family News! said...

Praying for you and Princess Lindsay.

Toby & Nora Ward said...

Although this isn't wonderful, it is way better than what it was. Praise be to God! He will continue to watch over Lindsay and your family.

Days like this will make great stories for guilting Lindsay into feeling sorry for you when she is a teenager!

The mom of 4 monkeys! said...

Thank you God for the good news. I will keep praying for more!

ShannonLeideker said...

OH thank good for an update and a good one at that. I have been refreshing the page non-stop! Praying for Lindsay!

The Davidson Gang said...

Let's go baby girl!!! We're praying for you. Keep your chin up and your faith in full force, love you guys!

Kristen, Travis and the kids.

The Seegers said...

Praying many prayers for you!!

Anonymous said...

Suzie,
Luck has nothing to do with it.
You have been truely blessed by God.
We love you!
Kirk, Jody and hundreds of people across the country that are praying for you and your family!

The Butcher Family said...

PRAISE GOD! We are still praying...

Love you~ Rebecca

Megan said...

Thanks so much for updating... I'm glad that there is some good news.. Praying for little miss Lindsay to get better soon! She is so cute!

Anonymous said...

We are praying for you!!!
The Staff At National City Bank/Parchment

Anonymous said...

Your need for prayer was passed on by a friend today..... Lindsay has been in my prayers and thoughts today as well as for the rest of the family. I will continue to pray and check your amazing blog.

Love because of HIM

Cari Strickfaden

Twice Blessed said...

Thank you for keeping us updated. Still saying prayers for Lindsey, RJ and the rest of your family.

Amanda Groulx said...

What in the world!?!!?? I got busy at school and one of my classmates told me that she wasn't doing well. Thank God that you have awesome doctors along with many angels looking after her. It seems like everyone hits some sort of bump on the road to recovery so I guess Miss Lindsay had to go big. Hang in there she can do it!

Love,
Amanda

Anonymous said...

Been thinking a lot about a little girl I've never met. Gonna change that one day! I announce at Kalamazoo Speedway, and when I announced how she was doing with her new heart back a couple weeks ago, you should have heard the place.... it was really neat!

Hang in there kiddo! Lets keep those positive thoughts and updates coming!!!!!!

Jason Seltzer
Kalamazoo Speedway

Anonymous said...

Ditto Jody's comment---not sure Luck has anything to do with this miracle. Lots of tears at our house! Thank you so much for keeping us informed. This is an excellent link to prayer chains! Love to all. We'll be stalking....AuntC&UncleR XOXOXO

Stephanie said...

She's a fighter!!! GOD IS GREAT!!!!

Alyson said...

I'm sending lots of love, hugs and prayers Lindsay's way!

Brooke said...

Thank you, Jesus! I have been so worried about little Lindsay all day long!!! I've been praying and crying and pleading with God! Hang in there, guys!! We're praying for you!

Lauren said...

Thanks so much for the update. I could not stop thinking about you guys all day. I have been praying all day. Come on princess you are doing so good. Way to go Princess Lindsay!!!

Anonymous said...

Suzie, Thank you so much for taking the time to write an update for all of us that sit and keep a vigil for all of you in Ann Arbor! Again, the Power of Prayers! But, she is quite the fighter too! You are in our Thoughts and Prayers constantly. Hugs, Sara Dziewicki

aimee gillespie said...

Thank God! I've been praying and checking the blog all day. When the update finally came, I couldn't read it. I started reading it to Steve and I was crying so hard that he had to take over and read it to me! She is such a tough little cookie. We all just love her to pieces! Thanks for the updates. Lots of prayers still being lifted in our house!

Steve, Aimee, Ryan and Hannah

Lucy Nall said...

Lindsay is in my and my family's thoughts and prayers. We learned about your princess through sofi's carepage and her through ivillage. Lindsay is such a beautiful, strong girl that has so much life in her! God will pull her through this tough time! Your whole family is amazing and we are praying for you all!
God bless,
The Nall family

Anonymous said...

So glad she was not at home when this happened. Things seemed to be a moving a little too fast for a baby after a transplant. I hope she gets the rest she needs and improves quickly.
I also hope everyone who says they are praying, really are!

Natalie♥ said...

I am so sorry you had this set back today. I know she will continue to do better, please keep us updated often I am praying for her and you!

Tiffany Lockette said...

Our mighty God and Lindsay really want her to remain here to truly continue to amaze and inspire everyone. I am so proud of her, she is such a warrior. She is an absolute angel. I will keep praying for her to make it through all of this and have a happy, normal life. We love you sweet Lindsay and we are so proud of the courage you have shown throughout this journey. Big hugs and heart felt prayers coming your way sweet princess. You are amazing.

MaryJane & David said...

We are very sorry to hear about the setback but we have been praying for the Princess and have asked several people to put her on a prayer chain and it was also listed on my facebook page asking for prayers!! We know the good Lord will take care of the Little Princess and we think she will be fine. Heart Hugs..MaryJane & David

Kyle Keiser said...

sometimes silence says it all......it can fill a room when no words can and crosses dimensions of prayer, meditation, reflection and wishes on stars.....all based in love and hope.

So, I send silence......for all that you need it to be. And remember, breathe :)

Kyle

MJ and David said...

We are just trilled with the updates and can't wait for a picture of the Princess!!!

Anonymous said...

Best turn of events I have heard! I hope Lindsay gets a good nights sleep and continues to push forward!! Very best wishes and many prayers for all of you...Kimberly

Anonymous said...

May God continue to give all of you strength. Remember -- he holds all of us in the palm of his hand.

kayla dean said...

Thank you for the update, we are all praying for you and your family!!!!

Keep fighting Lindsay you can do it!!!

Anonymous said...

Keep fighting Princess! We are all praying for you!!

Love, The Martin Family

Stephanie said...

Thanking and praising God for some developments(good developments that is). Saying a special prayer for Lindsay tonight.

Praying that she is able to get the rest that she needs so that her body can recover and she'll be 100% again in no time!

Take your time Lindsay...take the time you need to recover. Know that you have lots and lots of people that love you and are praying for you right now. Stay strong little princess!!!! We love you!

The Carrolls said...

He truly answers our prayers!

Claudia Funkhouser said...

I just learned about Lindsay a couple of weeks ago and began following her story. I am so amazed by your beautiful little girl and praying for her and for more good news, well great news.
Emery's Grammy

Melissa said...

Now I can breath a little better! I will keep the Dean family in prayers and thanks for the updates.

Anonymous said...

We are thinking about you guys non-stop and praying for sweet Lindsay. I am glad to hear things are moving in a better direction.

The Mendhams

Sharon said...

Suzie - Sending strength and prayers from California!!!! Lindsay is a very strong little girl (and so is her mom). Hang in there.

Diana said...

Been thinking about you all day, so glad to hear the update is positive. This little princess is a fighter. She has surprised us all before and will again. Hope you all get some much needed rest tonight.

Alison and Rich Lee said...

Oh Lindsay, not this path. There are bumps in every road so it is comforting to know that you are in a place with such incredibly skilled doctors and staff. Go girl go!!! Once again...show them your strength!!!!

I checked the blog early this morning and there was nothing updated. Of all the times, I did not stalk today. When I checked it just now it made my heart stop. I am so thankful that good news was given. I cannot imagine how scared you must have been!! Just know how much everyone loves you!!!!!!!!!!

Anonymous said...

I'm still praying for you guys, and I'm getting my friends to pray for you as well!

kd, from jersey

Sheridith said...

In the midst of what a consider to be a bad day I am suddenly reminded to (1) SMILE...there is GOOD news and (2)I am blessed...your daughter is adorable and I will pray for her healing and many many more smiles for you!!

melissa said...

This is good news. We have been praying hard for Lindsey today...She has been on my mind all day. In fact, I couldn't quit checking for updates.

I hope she gets the well needed rest and gives her body time to heal.

I pray the God wraps his hands around Lindsey and holds her tight when you can't. Until then just Believe!!

Much love and prayers from Georgia...
Melissa Langston
CHD Mom
cp:matthewjoshua

lifelovers said...

Our Charity was on ECMO in April, she just came home this last Friday...we will pray for sweet Lindsay, that home is also just around the corner for her...with a wonderful strong heart and everything else!

Anonymous said...

Lindsay will make it through this. She is so strong - there are sure to be ups and downs along the way through recovery, but your little girl will pull through this! She is truly a miracle baby. I will be praying for her and checking in every day - your blogsite is one of the first ones I check up on every day!
May God give you the comfort, strength and faith to get you through this difficult time. Lindsay will be her giggly self very soon again!

Karen
cincymomof4

The Jones Clan said...

I am so glad that Lindsay is doing better. I had to reread the first post to realize that it was truly happening now. It took awhile for my jaw to come up off of the floor. I have been praying for her and your family ever since. Still praying that she gets better soon and you can finally take her home.

Danielle @ Living Out Loud said...

Praise the Lord! I have been non-funtional today worrying and praying over Lindsay. I am relieved to get your update and hear that she is stable. It is unbelievable how much a little girl can be loved and cared for by so many strangers... my heart will not rest, nor will my prayers cease, until she is healed and at home with her whole family. Praying for more miracles and an uneventful night. Love to you... Danielle

Our Family said...

We are praying SO HARD for your little princess!!!! What a tough little cookie Lindsay is! I hope you guys are able to relax a little bit now that Lindsay is resting on ECMO. God bless you guys!
Bernie and Family

Anonymous said...

Andrea gave me an update and the news is encouraging...I'm praying like she was my own. Love to your whole family. Owen's Gramma Vicki

The Dreier Family said...

I just read the updates for today...I'm so glad she is doing better after your scare. We will be praying for quick healing for your princess.

CinderellaMommy said...

I came on over to your blog from Kelly's Korner - your daughter is beautiful! You will all be in our prayers here in Wisconsin!

Chesnye said...

I found your blog months ago through Gracie Gledhill. We are praying for you in Missouri!
Hugs,
Chesnye

Anonymous said...

Prayers for princess lindsay!!!
Esperanza

Anonymous said...

I can't even pretend to know what to say to you and JR right now, but keep hanging on...God sees even when you are only hanging on by a finger...He knows something we don't. And I'm sure it's wonderful! Keep fighting baby girl!

Thea said...

We are praying for your precious little girl. I am reminded that the best advice I was ever given in crisis is that "this isn't a surprise to God...and he loves your baby more than you ever could" which gave me some comfort. I pray that the peace of God which surpasses all understanding will fill Lindsay's hospital room and your hearts.

Thea

Evie's Story said...

Oh my! Just catching up on the last two posts. What a terrifying experience...I just ache for you! Praying she continues to stabilize and has a peace filled night. She has overcome so much! Trusting Jesus is holding her close and giving her little body and heart rest. Praying!!
Mandy

Anonymous said...

Yea that things look okay! We are praying for you! Stay strong and believe! We love you Lindsay!
The Butchers CP: BrittneyButcher

Jessica said...

Dean Family,

What a shock to get online tonight and read about today's events...Thanking God that the staff was already at Lindsay's side when it happened. We are praying for Lindsay and for all of you and are so thankful for the good news about her heart and brain.

Amby D. Taylor said...

Suzie-
My thoughts and prayers are with you and your family. I have been visiting this site often and felt the need to allow you all time.
I am so happy that Lindsay celebrated her 1st birthday last week.
Continued prayers will come your way from North Carolina. Remember that Lindsay's purpose is in HIS hands!
Much love,
Amby Darr Taylor

Wendy said...

I came across your page from a carepage and saw your beautiful princess! Praise the Lord that the tests so far look ok. May God continue to wrap your princess in his healing hands. Heart Hugs, Wendy from Kalamazoo,MI

Amber said...

This is the first I've heard of your blog. I hate that it is on bad terms though. I will be praying for you little girl and your family. I hope things go ok.

Anonymous said...

Suzie and Jr, thanks for taking to time away from little princess to keep us all informed. Dani called me at work tonite to let me know she was alittle better, it was great news! She's been through sooo much, she sure deserves to be on the mend. Get some rest princess, and get better. Prayers to you guys.
Don and Brenda

Teresa @ Grammy Girlfriend said...

Continuing to pray....I will be back to your blog often....

Omah's Helping Hands said...

Suzie, so glad to hear that help was there right when Lindsay needed it. She is still in our prayers. May the Lord continue to hold her and walk her through this difficult time and may He also comfort you and JR. Thank you for the update. Love and Blessings to you all.

Grammy Staffy said...

I wish you all the very best. May God bless your precious Lindsay with a speedy recovery. Many are sending you love and prayers.

Lindsay Norsworthy said...

Praise God for that news! Praying for her continued healing.

Anonymous said...

See our group hug out here in the great state of Oregon worked Lindsay! We were all thinking of you today and your fight! You are from a strong family and you will make it through. Keep fighting! We are thinking of all of you tonite...

Mark Randall & Family

Anonymous said...

Thinking of you all day today...hoping and praying. You can do it!
-Baileys

Talia said...

I am so glad to hear that things are going better for sweet Lindsay, we will be saying a prayer for her tonight.

LoPeZ FaMiLy said...

Go Lindsay Go! Prayers go out for her!

Crysgoss said...

Many prayers for your family and sweet Lindsay!

Sarah said...

STILL PRAYING!! Hang tough little girl!!!!

Anonymous said...

We're still praying too. Hope the princess had a good night.
Sandy Sellers and family

Justina said...

I can only imagine the rollercoaster of emotions that you all have been through! I found out about your blog through Gracie's...so I've only been following for about a week now, and I feel like I already love that little princess! I read your post yesterday and my heart just broke, the only option was to pray, and to pray harder. May God continue to bless that sweet little girl...I feel like He's got such an amazing plan for her life...and my prayers are still with you all! Get 'em Lindsay :) Don't let anything stop you, princess! :) And thank you for the updates, Suzie...I'm definitely a part of that group that's been checking every 5-10 minutes to see if there's been an update! I pray that God gives you the strength and peace to continue to help Lindsay fight through all these opstacles!

Anonymous said...

We are friends of the Schomakers and want you to know that we are praying for your precious little girl!

Heart hugs,
Sheila Ruma and family
Mom to Joshua (HLHS)

Sneaky Momma said...

Praying for that sweet baby girl of yours and your family here in Texas. :)

ABandCsMom said...

Our daughter spent 3 1/2 days on ECMO at UofM. Her surgeon was Dr. Ohye. I still, to this day, have a very hard time looking at those pictures of her while on ECMO. Of course she was only 8.8lbs at the time. She looked like a little peanut hooked up to all those tubes and wires. 21 I believe! God be with you all during this time. We will be praying and checking back often.

Denise Russo said...

We will keep your daughter in our prayers. My daughter was on ECMO at birth for 8 days and it was the most difficult time but gave her little body time to rest and her heart to heal after heart surgery. Hang in there - Lindsay is a fighter - all heart babies are!!
Denise

Anonymous said...

She is a strong little girl and such an inspiration. We are keeping Lindsay and your family in our thoughts often.
The Strakalaitis Family

Anonymous said...

What good news. Stay strong and BELIEVE <3. Praying for you all!! Kandi Butcher

Mommy_of_YaDa said...

Praying real hard for Lindsay! Much love and praying all the way from Maryland. Hoping all goes well today!

Nicole said...

Just wanted to let you know that I've been lurking on your blog for a while now and that I've been thinking about Lindsay all day today.

I was so alarmed to read your recent updates after everything seemed to be going so well. I guess it truly shows how unpredictable these things are.

I hope for good news soon!

Jan's Blog said...

You are in my thoughts and prayers. Hold close to your Father in Heaven...He has His arms around all of you!

Karen said...

Prayers to you from Gulfport, Mississippi. My son, Nathan, was successfully treated at C.S. Mott for PAPVR. Lindsay is in great hands. I am putting out a call for prayer on my website, too. Blessings, Karen.

LindsayManfull said...

Precious baby girl,
I am praying for you without ceasing. May the Lord continue to keep you in His grip and give you strenght and perfect rest. In these next couple of days, may your heart get the rest it needs and give your precious little brain rest to be perfectly healed in the Father's hands. God bless you and your family, you are all in my thoughts and prayers. Jesus LOVES you Lindsay!
COLEs Prayer TEam
www.colesfoundation.com
Lindsay Manfull

I'm the Mom said...

Praying for Lindsay!!!!!!

Stacy
Mom to my HLHS boy Noah

mommyoflove2 said...

I saw your blog linked from Kelly's Korner. I just wanted to say that I am lifting you and your baby girl up in prayers.

Heidi (chicago)